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Stepping Stones Triple P and Acceptance and Commitment Therapy for Parents of Children with Cerebral Palsy: Trial Protocol

Published online by Cambridge University Press:  28 August 2013

Koa Whittingham ,
Matthew Sanders ,
Lynne McKinlay  and
Roslyn N. Boyd
Koa Whittingham*
Affiliation:
Queensland Cerebral Palsy and Rehabilitation Research Centre, School of Medicine, The University of Queensland, Brisbane, Australia Parenting and Family Support Centre, School of Psychology, The University of Queensland, Brisbane, Australia
Matthew Sanders
Affiliation:
Parenting and Family Support Centre, School of Psychology, The University of Queensland, Brisbane, Australia
Lynne McKinlay
Affiliation:
Queensland Paediatric Rehabilitation Service, Royal Children's Hospital, Brisbane, Australia
Roslyn N. Boyd
Affiliation:
Queensland Cerebral Palsy and Rehabilitation Research Centre, School of Medicine, The University of Queensland, Brisbane, Australia
*
Address for correspondence: Dr Koa Whittingham, Queensland Cerebral Palsy and Rehabilitation Research Centre, Level 7, Block 6, RBWH Herston, Brisbane, 4029, Australia. E-mail: [email protected]
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Abstract

This project aims to optimise outcomes for children with cerebral palsy (CP) and their families by testing the efficacy of two complementary interventions novel to the CP population: (1) parenting intervention (Stepping Stones Triple P, SSTP); and (2) parental stress management (Acceptance and Commitment Therapy, ACT) tailored for parents of children with CP. The efficacy of SSTP and the additional effects of ACT will be tested in a wait-list randomised controlled trial, with parents of children with CP (N = 110) randomised into three groups; SSTP, SSTP + ACT and wait-list control. Intervention delivery will combine group sessions with phone consultations. Outcomes will be assessed post-intervention with retention of effect examined at 6-month follow-up. Child outcomes will include: externalising behaviour (primary child outcome), functional performance, parent-reported child quality of life; and parent outcomes will include: dysfunctional parenting (primary parent outcome), parental confidence in performing disability-related parenting practices, degree of problems in performing disability-related parenting practices, parental adjustment, psychological flexibility and parental attitude to child emotions. The theoretical background, study design and study procedures are discussed. The validation of a parenting intervention and a parenting stress intervention for parents of children with CP is crucial to better support parents of children with CP in their parenting role and in providing evidence-based intervention for behavioural and emotional problems in children with CP.

Keywords

parentingbehavioural family interventioncerebral palsyacceptance and commitment therapymindfulness
Type
Controlled Trial Forum
Information
Brain Impairment , Volume 14 , Issue 2 , September 2013 , pp. 270 - 280
Copyright
Copyright © The Author(s), published by Cambridge University Press on behalf of Australian Academic Press Pty Ltd 2013 

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