Personal Experiences of Families of Children With a Traumatic Brain Injury in the Transition From Hospital to Home

Abstract

For the families of children with traumatic brain injury (TBI) the transition from hospital to home, school and community can be a very stressful time for everyone involved. The present phenomenological study explored the experiences and perceptions of parents of children with TBI during this important transition time with the aim to better inform health-workers involved in discharge management and rehabilitation. Six family representatives were interviewed, with the format of interviews being semistructured. An interview guide was used that outlined key issues to be explored with each participant. The primary analytical approach was inductive and thematic content analysis was used. The themes which emerged related to the emotional journey experienced by the family, the impact of significant relationships in the process of adjustment, along with service provision and coping strategies. These themes are highlighted with respect to how they can influence intervention strategies. Implications for service referral and the communication style of health professionals are also addressed.