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Men with adult-onset epilepsy: Their experiences of health care provider relationship qualities following neurosurgery

Published online by Cambridge University Press:  22 December 2020

Martin Raffaele Open the ORCID record for Martin Raffaele [Opens in a new window]  and
Charity Tinofirei
Martin Raffaele*
Affiliation:
Centre for Disability Research and Policy, Discipline of Rehabilitation Counselling, School of Health Sciences, Faculty of Medicine and Health, University of Sydney, Lidcombe, NSW, 2141, Australia
Charity Tinofirei
Affiliation:
Rehabilitation and Health Services Department (Health Services Research), College of Health and Public Service, University of North Texas, Denton, TX76201, USA
*
*Corresponding author. Email: [email protected]
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Abstract

The success of a lobectomy procedure for adult-onset epileptic seizure (AOES) would depend on the quality of the patient’s relationship with the health care provider. This ethnographic multiple case study explored patient and health professional relationship contexts following surgery for seizure activity reduction treatment. We interviewed five Australian men (aged 34–59) with a history of AOES and neurosurgery regarding the quality of their relationship with health care providers. Interpretive phenomenological analysis (IPA) of the data yielded three interrelated relationship themes of Timeliness (promptness of necessary care), Support (availability, understanding, and empathy), and Responsibility (adaptive communication, self-care, and decision-making ownership). Self-directed relationship resourcing enhanced subjective well-being in the patients.

Keywords

Epilepsyseizuressubjective wellbeing (SWB)
Type
Articles
Information
The Australian Journal of Rehabilitation Counselling , Volume 26 , Issue 2 , December 2020 , pp. 105 - 119
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Copyright
© The Author(s) 2020. Published by Cambridge University Press and The Australian Journal of Rehabilitation Counselling

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