Hostname: page-component-586b7cd67f-2brh9 Total loading time: 0 Render date: 2024-11-28T08:23:43.796Z Has data issue: false hasContentIssue false
  • English
  • Français

Determinants of Independent Living Optimism among Adults with Multiple Sclerosis

Published online by Cambridge University Press:  05 June 2015

Jian Li ,
Hannah Wilson ,
Shawn M. Fitzgerald ,
Malachy Bishop  and
Phillip D. Rumrill
Jian Li*
Affiliation:
School of Foundations, Leadership, and Administration, Kent State University
Hannah Wilson
Affiliation:
School of Foundations, Leadership, and Administration, Kent State University
Shawn M. Fitzgerald
Affiliation:
School of Education, Innovation, and Continuing Studies, Widener University
Malachy Bishop
Affiliation:
Department of Early Childhood, Special Education, and Rehabilitation Counseling, University of Kentucky
Phillip D. Rumrill
Affiliation:
School of Lifespan Development and Educational Sciences, Kent State University
*
Correspondence author: Jian Li, School of Foundation, Leadership and Administration, 316 White Hall, PO Box 5190, Kent State University, Kent, Ohio, 44242. Email: [email protected]
Get access

Abstract

This study investigated the relationship between cognitive, psychological and physical symptoms of multiple sclerosis (MS) and independent living optimism among a sample of 5,082 adults with MS (females = 77.8%; Whites = 96.1%, age range 20 to 91 years). Data on physical, cognitive and psychological function were collected utilising standardised clinical measures including the Multiple Sclerosis Impact Scale-29, Perceived Deficits Questionnaire-5-Item version, and the Independent Living Optimism scale. Multiple regression analysis indicated that specific physical, psychological and cognitive factors contributed to the overall prediction model. The combined variables explained approximately 33% of the variance in independent living optimism. This study enables a specific, item-level understanding of the relationship between MS-related symptoms and independent living optimism, and provides important information for the development of targeted rehabilitation interventions.

Keywords

multiple sclerosisindependent livingmobilityoptimism
Type
Articles
Information
The Australian Journal of Rehabilitation Counselling , Volume 21 , Issue 1 , July 2015 , pp. 1 - 17
Check for updates
Copyright
Copyright © The Author(s) 2015 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84 (2), 191–215.CrossRefGoogle Scholar
Beatty, W., Blanco, C., Wilbanks, S., Paul, R., & Hames, K. (1995). Demographic, clinical, and cognitive characteristics of multiple sclerosis patients who continue to work. Journal of Neurological Rehabilitation, 9, 167–193.Google Scholar
Bishop, M., Roessler, R., Rumrill, P., Sheppard-Jones, K., Frain, M., Waletich, B., & Umeasiegbu, V. (2013). The relationship between housing accessibility variables and employment status among adults with multiple sclerosis. Journal of Rehabilitation, 79 (4), 4–14.Google Scholar
Centers for Disease Control and Prevention. (2014). Disability and Health. Retrieved on November 25, 2014, from http://www.cdc.gov/ncbddd/disabilityandhealth/people.htmlGoogle Scholar
Cohen, J. (1988). Statistical Power Analysis for the Behavioral Sciences (2nd ed.). Hillsdale, NJ: Erlbaum.Google Scholar
Davis, P., & Tyry, T. (2008). NARCOMS report-2007 registry update. Multiple Sclerosis Quarterly Report, 26 (4). Retrieved May 10, 2012, from: http://www.unitedspinal.org/publications/msqr/2008/02/04/narcoms-report-2007-registry-update/.Google Scholar
DeLuca, J., & Nocentini, U. (2011). Neurological, medical, and rehabilitative management in persons with multiple sclerosis. Neuro Rehabilitation, 29, 197–219.Google Scholar
Denney, D.R., Gallagher, K.A., & Lynch, S.G. (2011). Deficits in processing speed in patients with multiple sclerosis: Evidence from explicitly-timed and covertly-timed measures. Archives of Clinical Neuropsychology, 26, 110–119.CrossRefGoogle ScholarPubMed
Denney, D.R., Hughes, A.J., Owens, E.M., & Lynch, S.G. (2012). Deficits in planning time but not performance in patients with multiple sclerosis. Archives of Clinical Neuropsychology, 27, 148–158.CrossRefGoogle Scholar
Denney, D.R., Lynch, S.G., Parmenter, B.A., & Horne, N. (2004). Cognitive impairment in relapsing and primary progressive multiple sclerosis: Mostly a matter of speed. Journal of the International Neuropsychological Society, 10, 948–956.CrossRefGoogle ScholarPubMed
Dillman, D. A., Smyth, J. D., & Melani Christian, L. (2009). Internet, Mail, and Mixed-Mode Surveys: The Tailored Design Method (3rd ed.). Hoboken, NJ: Wiley.Google Scholar
Einarsson, U., Gottberg, K., Fredrikson, S., von Koch, L., & Holmqvist, L.W. (2006). Activities of daily living and social activities in people with multiple sclerosis in Stockholm County. Clinical Rehabilitation, 20 (6), 543–551.CrossRefGoogle ScholarPubMed
Finlayson, M. (2004). Concerns about the future among older adults with multiple sclerosis. American Journal of Occupational Therapy, 58 (1), 54–63.CrossRefGoogle ScholarPubMed
Finlayson, M., & Van Denend, T. (2003). Experiencing the loss of mobility: Perspectives of older adults with MS. Disability and Rehabilitation, 25 (20), 1168–1180.CrossRefGoogle ScholarPubMed
Fraser, R., Clemmons, D., & Bennett, F. (2002). Multiple Sclerosis: Psychosocial and Interventions. New York: Demos.Google Scholar
Fraser, R.T., Kraft, G.H., Ehde, D.M., & Johnson, K.L. (2006). The MS Workbook: Living Fully with Multiple Sclerosis. Oakland, CA: New Harbinger Publications, Inc.Google Scholar
Gmeindl, L., & Courtney, S.M. (2012). Deconstructing spatial working memory and attention deficits in multiple sclerosis. Neuropsychology, 26 (1), 57–70.CrossRefGoogle ScholarPubMed
Gulick, E. (1997). Correlates of quality of life among persons with multiple sclerosis. Nursing Research, 46, 305–311.CrossRefGoogle ScholarPubMed
Gray, O.M., McDonnell, G.V., & Hawkins, S.A. (2009). Tried and tested: The psychometric properties of the multiple sclerosis impact scale (MSIS-29) in a population-based study. Multiple Sclerosis, 15, 75–80.CrossRefGoogle ScholarPubMed
Iezzoni, L., & Ngo, L. (2007). Health, disability, and life insurance experiences of working-age persons with multiple sclerosis. Multiple Sclerosis, 13, 534–546.CrossRefGoogle ScholarPubMed
Herndon, R. (2000). Pathology and pathophysiology. In Burks, J. & Johnson, K. (eds.). Multiple Sclerosis: Diagnosis, Medical Management, and Rehabilitation (pp. 35–45). New York, NY: Demos Medical Publishing, Inc.Google Scholar
Hobart, J.C., Lamping, D.L., Fitzpatrick, R., Riazi, A., & Thompson, A.J. (2001). The Multiple Sclerosis Impact Scale (MSIS-29): A new patient-based outcome measure. Brain, 124, 962–973.CrossRefGoogle ScholarPubMed
Hobart, J.C., Riazi, A., Lamping, D.L., Fitzpatrick, R., & Thompson, A.J. (2004). Improving the evaluation of therapeutic interventions in multiple sclerosis: Development of a patient-based measure of outcome. Health Technology Assessment, 8 (9), 1–48.CrossRefGoogle ScholarPubMed
Hobart, J.C., Riazi, A., Lamping, D.L., Fitzpatrick, R., & Thompson, A.J. (2005). How responsive is the Multiple Sclerosis Impact Scale (MSIS-29)? A comparison with some other self-report scales. Journal of Neurology, Neurosurgery and Psychiatry, 76, 1539–1543.CrossRefGoogle ScholarPubMed
Johansson, S., Ytterberg, C., Claesson, I.M.et al. (2007). High concurrent presence of disability in multiple sclerosis. Associations with perceived health. Journal of Neurology, 254, 767–773.CrossRefGoogle ScholarPubMed
Jonides, J., Lewis, R.L., Nee, D.E., Lustig, C.A., Berman, M.G., & Moore, K.S. (2008). The mind and brain of short-term memory. Annual Review of Psychology, 59, 193–224. doi:10.1146/annurev.psych.59.103006.093615CrossRefGoogle ScholarPubMed
Kalb, R. (2012). Multiple Sclerosis: The Questions You Have, the Answers You Need. New York, NY: Demos Medical Publishing, Inc.Google Scholar
Kierkegaard, M., Einarsson, U., Gottberg, K.et al. (2012). The relationship between walking, manual dexterity, cognition and activity/participation in persons with multiple sclerosis. Multiple Sclerosis, 18, 639–646.Google ScholarPubMed
Klingbeil, H., Baer, H.R., & Wilson, P.E. (2004). Aging with a disability. Archives of Physical and Medical Rehabilitation, 85, S68–S73.Google ScholarPubMed
Lemelle, J.L., Guillemin, F., Aubert, D., Guys, J.M., Lottmann, H., Lortat-Jacob, S., Mouriquand, P., Ruffion, A., Moscovici, J., & Schmitt, M. (2006). Quality of life and continence in patients with spina bifida. Quality of Life Research, 15, 1481–1492.CrossRefGoogle ScholarPubMed
Lomax, R.G., & Hahs-Vaughn, D. (2012). An Introduction to Statistical Concepts (3rd ed.). New York, NY: Taylor & Francis Group.Google Scholar
Michalski, D., Liebig, S., Thomae, E., Singer, S., Hinz, A.et al. (2010). Anxiety, depression and impaired health-related quality of life are therapeutic challenges in patients with multiple sclerosis. Mental Illness, 2:e5.CrossRefGoogle ScholarPubMed
Newland, P.K., Flick, L.H., Thomas, F.P., & Shannon, W.D. (2014). Identifying symptom co-occurrence in persons with Multiple Sclerosis. Clinical Nursing Research, 23 (5), 529–543.CrossRefGoogle ScholarPubMed
Pedhazur, J. (1997). Multiple Regression in Behavioral Research. Belmont, CA: Wadsworth.Google Scholar
Polman, C., Thompson, A., Murray, T., Bowling, A., & Noseworthy, J. (2006). Multiple Sclerosis: The Guide to Treatment and Management. New York, NY: Demos Medical Publishing, Inc.Google Scholar
Riazi, A., Thompson, A.J., & Hobart, J.C. (2004). Self-efficacy predicts self-reported health status in multiple sclerosis. Multiple Sclerosis, 10 (1), 61–66.CrossRefGoogle ScholarPubMed
Ritvo, P.G., Fischer, J.S., Miller, D.M., Andrews, H., Paty, D.W., & LaRocca, N.G. (1997). Multiple Sclerosis Quality of Life Inventory: A User's Manual. New York: National Multiple Sclerosis Society.Google Scholar
Roessler, R., & Gitchel, D. (2013). Severity, employment, and gender: Factors influencing independence for adults with multiple sclerosis. Journal of Rehabilitation, 79, 33–45.Google Scholar
Roessler, R.T., Gitchel, W.D., & Bishop, M. (2013). Housing satisfaction: An additive predictor of QOL for adults with MS? Journal of Vocational Rehabilitation, 39, 101–109.CrossRefGoogle Scholar
Roessler, R., Rumrill, P., & Fitzgerald, S. (2004). Predictors of employment status for people with multiple sclerosis. Rehabilitation Counseling Bulletin, 47 (2), 97–103.CrossRefGoogle Scholar
Rumrill, P., Fraser, R., & Johnson, K. (2013). Employment and workplace accommodation outcomes among participants in a vocational consultation service for people with multiple sclerosis. Journal of Vocational Rehabilitation, 39, 85–90.CrossRefGoogle Scholar
Schapiro, R.T. (2003). Managing the Symptoms Of Multiple Sclerosis (4th ed.). New York, NY: Demos Medical Publishing, Inc.Google Scholar
Sheppard-Jones, K., Bishop, M., Kinyanjui, B., Roessler, R.T., Rumrill, P.D., Waletich, B., & Umeasiegbu, V. (2013). Specialized housing policies, resources, and services for Americans with multiple sclerosis: Priorities for a national agenda. Journal of Rehabilitation, 79 (4), 15–22.Google Scholar
Smith, C. & Schapiro, R. (2004). Neurology. In Kalb, R. (3rd ed.), Multiple Sclerosis: The Questions You Have the Answers You Need (pp. 7–42). New York, NY: Demos Medical Publishing, Inc.Google Scholar
Snook, E.M., & Motl, R.W. (2008). Physical activity behavior in individuals with multiple sclerosis: roles of overall and specific symptoms, and self-efficacy. Journal of Pain Symptom Manage, 36 (1), 46–53.CrossRefGoogle ScholarPubMed
Sullivan, M.J., Edgley, K., & Dehoux, E. (1990). A survey of multiple sclerosis. Part I: Perceived cognitive problems and compensatory strategies use. Canadian Journal of Rehabilitation, 4, 99–105.Google Scholar
Tyry, T. (2009). NARCOMS Report: Registry Status in Spring 2009. Retrieved May 1, 2012, from: http://www.unitedspinal.org/msscene/2009/08/13/narcoms-report-registry-status-in-spring-2009/.Google Scholar
Ytterberg, C., Johansson, S., Andersson, M., et al. (2008). Variations in functioning and disability in multiple sclerosis: A two-year prospective study. Journal of Neurology, 255, 967–973.CrossRefGoogle ScholarPubMed