Hostname: page-component-78c5997874-t5tsf Total loading time: 0 Render date: 2024-11-02T18:45:30.222Z Has data issue: false hasContentIssue false
  • English
  • Français

‘We are not blaming anyone, but if we don't know about amenities, we cannot seek them out’: black and minority older people's views on the quality of local health and personal social services in England

Published online by Cambridge University Press:  10 December 2008

JILL MANTHORPE ,
STEVE ILIFFE ,
JO MORIARTY ,
MICHELLE CORNES ,
ROGER CLOUGH ,
LES BRIGHT  and
JOAN RAPAPORT
JILL MANTHORPE*
Affiliation:
Social Care Workforce Research Unit, King's College London, UK.
STEVE ILIFFE
Affiliation:
Department of Primary Care and Population Sciences, University College London, London, UK.
JO MORIARTY
Affiliation:
Social Care Workforce Research Unit, King's College London, UK.
MICHELLE CORNES
Affiliation:
Social Care Workforce Research Unit, King's College London, UK.
ROGER CLOUGH
Affiliation:
Eskrigge Social Research Ltd, Gressingham, Lancaster, UK.
LES BRIGHT
Affiliation:
Independent Consultant, Exeter, UK.
JOAN RAPAPORT
Affiliation:
Social Care Workforce Research Unit, King's College London, UK.
*
Address for correspondence: Jill Manthorpe, Social Care Workforce Research Unit, King's College London, Melbourne House, 5th Floor, 46 Aldwych, LondonWC2 4LL, UK. E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Improving access to culturally-appropriate services and enhancing responses to the needs of older people from black and minority ethnic backgrounds were among the aims of the National Service Framework for Older People (NSFOP) that was introduced in England in 2001. Progress in meeting the aims of the NSFOP was evaluated by a mid-term independent review led by the Healthcare Commission, the body responsible for regulating health-care services in England. This paper reports the consultation with older people that underpinned the evaluation. It focuses on the views and experiences of older people from black and minority ethnic (BME) groups and of the staff that work in BME voluntary organisations. A rapid appraisal approach was used in 10 purposively selected local councils, and plural methods were used, including public listening events, nominal groups and individual interviews. In total 1,839 older people participated in the consultations and 1,280 (70%) completed a monitoring form. Some 30 per cent defined themselves as of a minority ethnic background. The concerns were more about the low recognition of culturally-specific and language needs than for the development of services exclusively for BME older people.

Keywords

black and minority ethnic older peopleUK National Service Framework for Older Peopleconsultationhealth servicessocial care
Type
Research Article
Information
Ageing & Society , Volume 29 , Issue 1 , January 2009 , pp. 93 - 113
Copyright
Copyright © 2008 Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Ahmad, W. I.-U. and Atkin, K. (eds) 1996. ‘Race’ and Community Care. Open University Press, Buckingham.Google Scholar
Ahmad, W. I. U. and Walker, R. 1997. Asian older people: housing, health and access to services. Ageing & Society, 17, 1, 141–65.CrossRefGoogle Scholar
Alexander, C., Edwards, R., Temple, B., with, Kanani, U., Zhuang, L., Mohib, M. and Sam, A. 2004. Access to Services with Interpreters: User Views. Joseph Rowntree Foundation, York.Google Scholar
Anthias, F. 1992. Ethnicity, Class, Gender and Migration: Greek-Cypriots in Britain. Avebury, Aldershot, Hampshire.Google Scholar
Audit Commission 2004. The Journey to Race Equality: Delivering Improved Services to Local Communities. Audit Commission, London.Google Scholar
Bainbridge, I. and Ricketts, A. 2003. Improving Older People's Services: An Overview of Performance. Social Services Inspectorate, London.Google Scholar
Begum, N. 2006. Doing it for Themselves: Participation and Black and Minority Ethnic Service Users. Social Care Institute for Excellence/Race Equality Foundation, London.Google Scholar
Blakemore, K. and Bhalla, A. 1979. The Elderly of Ethnic Minorities: A Review of the Literature and News of a Research Project in Birmingham. All Faiths for One Race, Birmingham, England.Google Scholar
Bondas, T. 2006. Paths to nursing leadership. Journal of Nursing Management, 14, 332–9.CrossRefGoogle ScholarPubMed
Bousetta, H. 2001. Extending Democracy Participation, Consultation and Representation of Ethnic Minority People in Public Life. Centre for the Study of Citizenship and Ethnicity, University of Bristol, Bristol, England.Google Scholar
Butt, J. 2005. Are we there yet? Identifying the characteristics of social care organisations that successfully promote diversity. In Butt, J., Patel, B. and Stuart, O. (eds) Race Equality Discussion Papers. Social Care Institute for Excellence, London, 4–28.Google Scholar
Butt, J. and Mirza, K. 1996. Social Care and Black Communities. Her Majesty's Stationery Office, London.Google Scholar
Butt, J. and O'Neil, A. 2004. ‘Let's Move On’: Black and Minority Ethnic Older People's Views on Research Findings. Joseph Rowntree Foundation, York.Google Scholar
City of Bradford Policy and Research Unit 1999. Population Estimates and Forecasts: Bradford Metropolitan District. City of Bradford, Bradford, West Yorkshire.Google Scholar
Connelly, N., Forsythe, L. A., Njike, G. and Rudiger, A. 2006. Older Refugees in the UK: A Literature Review. Refugee Council, Age Concern England, Age Concern London and Association of Greater London Women, London.Google Scholar
Coombe, V. 1978. Britain's other elderly. New Age, 3 (summer), 9–11.Google Scholar
Craig, G. and Rai, D. K. 1996. Social security, community care and ‘race’: the marginal dimension. In Ahmad, W. I. U. and Atkin, K. (eds) ‘Race’ and Community Care. Open University Press, Buckingham, 124–43.Google Scholar
Curtis, S. and Lawson, K. 2000. Gender, ethnicity and self-reported health: the case of African-Caribbean populations in London. Social Science and Medicine, 50, 3, 365–85.CrossRefGoogle Scholar
Delbecq, A. L. and Van de Ven, A. H. 1971. A group process model for problem identification and programme planning. Journal of Applied Behavioural Science, 7, 4, 466–92.CrossRefGoogle Scholar
Department for Communities and Local Government 2007. Third Sector Strategy for Communities and Local Government. Department for Communities and Local Government, London.Google Scholar
Department of Health 2001. National Service Framework for Older People. Department of Health, London.Google Scholar
Department of Health and Social Security and Welsh Office 1978. A Happier Old Age: A Discussion Document on Elderly People in Our Society. Department of Health and Social Security, London.Google Scholar
Dixon-Woods, M., Cavers, D., Agarwal, S., Annandale, E., Arthur, A., Harvey, J., Hsu, R., Katbamna, S., Olsen, R., Smith, L., Riley, R. and Sutton, A. 2006. Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups. BioMed Central Medical Research Methodology, 6, 1, 35.CrossRefGoogle ScholarPubMed
Drennan, V., Walters, K., Lenihan, P., Cohen, S., Myerson, S. and Iliffe, S. 2007. Priorities in identifying unmet need in older people attending general practice: a nominal group technique study. Family Practice, 24, 454–60.CrossRefGoogle ScholarPubMed
Gallagher, M., Hares, T., Spencer, J., Bradshaw, C. and Webb, I. 1993. The nominal group technique: a research tool for general practice? Family Practice, 10, 1, 76–81.CrossRefGoogle ScholarPubMed
Healthcare, Commission 2006 a. Living Well in Later Life: A Review of Progress against the National Service Framework for Older People. Commission for Healthcare Audit and Inspection, London.Google Scholar
Healthcare, Commission 2006 b. Variations in the Experiences of Patients Using the NHS Services in England. Commission for Healthcare Audit and Inspection, London.Google Scholar
Iliffe, S. and Manthorpe, J. 2004. The debate on ethnicity and dementia: from category fallacy to person-centred care? Aging and Mental Health, 8, 4, 383–92.CrossRefGoogle ScholarPubMed
Jee, M., Popay, J., Everitt, A. and Eversley, J. 1999. Evaluating a Whole Systems Approach to Primary Health Care Development. King's Fund, London.Google Scholar
Johnson, P. 2004. Analytic induction. In Cassell, C. and Symon, G. (eds) Essential Guide to Qualitative Methods in Organizational Research. Sage, London, 165–79.CrossRefGoogle Scholar
Katbamna, S., Ahmad, W., Bhakta, P., Baker, R. and Parker, G. 2004. Do they look after their own? Informal support for South Asian carers. Health and Social Care in the Community, 12, 5, 398–406.CrossRefGoogle ScholarPubMed
Lashko, G. 2006. Meeting the needs of black and minority ethnic communities. Housing, Care and Support, 9, 1, 2–4.Google Scholar
Leamy, M. and Clough, R. 2006. How Older People Became Researchers: Training, Guidance and Practice in Action. Joseph Rowntree Foundation, York.Google Scholar
Levenson, R. and Meredith, B. 2000. Elders' Health: The Voice of Experience. A Contribution to the Debate of the Age. Age Concern England, London.Google Scholar
Lowdell, C., Evandrou, M., Bardsley, M., Morgan, D. and Soljak, M. 2000. Health of Ethnic Minority Elders in London. Health of Londoners Project, London.Google Scholar
Manning, P. K. 1982. Analytic induction. In Smith, R. B. and Manning, P. K. (eds) Qualitative Methods. Volume 11, Handbook of Social Science Methods. Sage, Cambridge, Massachusetts, 273–302.Google Scholar
Manthorpe, J., Bright, L., Cornes, M., Rapaport, J., Clough, R., Iliffe, S., Moriarty, J. and OPRSI 2006. Commissioning community wellbeing: older people's views. Journal of Integrated Care 14, 4, 28–37.CrossRefGoogle Scholar
Manthorpe, J. and Klee, D. 2006. Partnership in inspection: lessons from the review of the NSFOP. Journal of Integrated Care, 14, 6, 45–52.Google Scholar
Manthorpe, J., Iliffe, S., Moriarty, J., Cornes, M., Rapaport, J., Clough, R., Bright, L. and Older People Researching Social Issues 2007. Five years on: older people's views of the National Service Framework for Older People. Age and Ageing 36, 5, 501–7.CrossRefGoogle Scholar
Mason, D. (ed.) 2003. Explaining Ethnic Differences: Changing Patterns of Disadvantage in Britain. Policy Press, Bristol, England.Google Scholar
McLeod, M., Owen, D. and Khamis, C. 2001. Black and Minority Ethnic Voluntary and Community Organisations: Their Role and Future Development in England and Wales. Policy Studies Institute, London.Google Scholar
Moriarty, J., Manthorpe, J., Iliffe, S., Cornes, M., Rapaport, J., Clough, R., Bright, L., Lakey, S. and Older People Researching Social Issues 2007 a. Using diverse sources of evidence: the role of audit and inspection reports in evaluating progress in the provision of services for people with dementia and their carers. Evidence and Policy, 3, 3, 385–405.CrossRefGoogle Scholar
Moriarty, J., Rapaport, P., Beresford, P., Branfield, F., Forrest, V., Manthorpe, J., Martineau, S., Cornes, M., Butt, J., Iliffe, S., Taylor, B. and Keady, J. 2007 b. Practice Guide: The Participation of Adult Service Users, including Older People, in Developing Social Care. Social Care Institute for Excellence, London.Google Scholar
Murphy, E., Dingwall, R., Greatbatch, D., Parker, S. and Watson, P. 1998. Qualitative Research Methods in Health Technology Assessment: A Review of the Literature. Health Technology Assessment 2(16), National Co-ordinating Centre for Health Technology Assessment, Southampton, Hampshire.Google ScholarPubMed
National Audit Office 2004. Delivering Public Services to a Diverse Society. Stationery Office, London.Google Scholar
Nazroo, J. Y. 2001. Ethnicity, Class and Health. Policy Studies Institute, London.Google Scholar
Nazroo, J. Y. and Williams, D. R. 2005. The social determination of ethnic/racial inequalities in health. In Marmot, M. and Wilkinson, R. (eds) Social Determinants of Health. Oxford University Press, Oxford, 238–66.Google Scholar
Office for National Statistics 2002. Social Focus in Brief: Ethnicity. Office for National Statistics, London.Google Scholar
Ong, B. N., Humphris, G., Annett, H. and Rifkin, S. 1991. Rapid appraisal in an urban setting, an example from the developed world. Social Science and Medicine, 32, 8, 909–15.CrossRefGoogle Scholar
Parry, G., Van Cleemput, P., Peters, J., Moore, J., Walters, S., Thomas, K. and Cooper, C. 2004. The Health Status of Gypsies and Travellers in England. School for Health and Related Research, University of Sheffield, Sheffield, South Yorkshire.Google Scholar
Peach, C. 2005. Caribbean mobility in Great Britain: spatial segregation and intermarriage. In Loury, G. C., Tariq, M. and Teles, S. M. (eds) Ethnicity, Social Mobility and Public Policy: Comparing the USA and UK. Cambridge University Press, Cambridge, 178–203.CrossRefGoogle Scholar
Policy Research Institute on Ageing and Ethnicity (PRIAE) 2005. Black and Minority Ethnic Elders in the UK: Health and Social Care Research Findings. PRIAE, Leeds, West Yorkshire.Google Scholar
Putnam, R. D. 2000. Bowling Alone. Touchstone, New York.Google Scholar
Ragin, C. C. 1994. Constructing Social Research. Pine Forge, Thousand Oaks, California.Google Scholar
Rait, G. and Iliffe, S. 2003. Care of older people. In Kai, J. (ed.) Ethnicity, Health and Primary Care. Oxford University Press, Oxford, 139–49.CrossRefGoogle Scholar
Royal Commission on Long Term Care of the Elderly 1999. With Respect to Old Age: Long Term Care: Rights and Responsibilities. Cm 4192-I, Stationery Office, London.Google Scholar
Ryan, M., Scott, D. A., Reeves, C., Bate, A., van Teijlingen, E. R., Russell, E. M., Napper, M. and Robb, C. M. 2001. Eliciting Public Preferences for Healthcare: A Systematic Review of Techniques. Health Technology Assessment 5(5), National Co-ordinating Centre for Health Technology Assessment, Southampton, Hampshire.Google ScholarPubMed
Secretaries of State for Health and Social Security Wales and Scotland 1989. Caring for People: Community Care in the Next Decade and Beyond. Cm 849, Her Majesty's Stationery Office, London.Google Scholar
Secretaries of State for Social Services, Scotland, Wales and Northern Ireland 1981. Growing Older. Cm 8173, Her Majesty's Stationery Office, London.Google Scholar
Simmons, R. and Birchall, J. 2005. A joined-up approach to user participation in public services: strengthening the ‘participation chain’. Social Policy and Administration, 39, 3, 260–83.CrossRefGoogle Scholar
Simpson, S. 1997. Demography and ethnicity: case studies from Bradford. New Community 23, 1, 89–107.Google Scholar
Van de Ven, A. H. and Delbecq, A. L. 1972. The nominal group as a research instrument for exploratory health studies. American Journal of Public Health, 62, 3, 337–42.CrossRefGoogle Scholar
Warnes, T., Lowles, R. and Oh, K. M. 2002. Older People in Yorkshire and the Humber. Age Concern in Yorkshire, Rotherham, South Yorkshire.Google Scholar
Warnes, A., Friedrich, K., Kelleher, L. and Torres, S. 2004. The diversity and welfare of older migrants in Europe. Ageing & Society, 24, 3, 307–26.CrossRefGoogle Scholar
World Health Organisation 1992. Guidelines for Rapid Appraisal to Assess Community Health Needs. World Health Organisation, Geneva.Google Scholar
Yu, W. K. 2000. Chinese Older People: A Need for Social Inclusion in Two Communities. Policy Press, Bristol, England.Google Scholar