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‘They're just who they've always been’: the intersections of dementia, community and selfhood in Scottish care homes

Published online by Cambridge University Press:  26 January 2017

STEVE MULLAY ,
PAT SCHOFIELD ,
AMANDA CLARKE  and
WILLIAM PRIMROSE
STEVE MULLAY*
Affiliation:
Dementia Services, NHS Shetland, Lerwick, UK.
PAT SCHOFIELD
Affiliation:
Faculty of Health, Social Care and Education, Anglia Ruskin University, Chelmsford, UK.
AMANDA CLARKE
Affiliation:
Department of Healthcare, Faculty of Health and Life Sciences, Newcastle upon Tyne, UK.
WILLIAM PRIMROSE
Affiliation:
Department of Medicine for the Elderly, Woodend Hospital, Aberdeen, UK.
*
Address for correspondence: Steve Mullay, Dementia Services, NHS Shetland, Grantfield, Lerwick, Shetland ZE1 0TB, UK E-mail: [email protected]
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Abstract

Issues stemming from differences and similarities in cultural identities affect residents and workforces in care homes in Scotland, as they do across the United Kingdom. Theoretical guidance and policy drivers emphasise the importance of considering cultural diversity when planning or enacting person-centred care processes, regardless of where health or social care takes place. Nevertheless, there is a recognised worldwide dearth of research concerning the intersections of culture, dementia and long-term care. This being so, a recent research study found that inadequate understandings of issues stemming from cultural diversity could be seen to constrain person-centred care in some Scottish care homes. In addition, the study uncovered little-recognised socio-cultural phenomena which were observed to positively enhance person-centre care. This article will focus on that, and will lay out findings from the study which lead to the following broad assertion: there is a broad lack of understanding of the power, and potential utility, of shared identity and community as a bulwark against the erosion of personhood which is often associated with dementia. This article describes these findings in some detail, thereby providing fresh insights into how shared cultural identity, and the sense of community it may bring, bears upon the interactions between workers and residents with dementia in Scottish care homes. It then suggests how the school of ‘person-centred care’ may be developed through further research into these phenomena.

Keywords

dementiaperson-centred careidentityculturecommunityScotland
Type
Article
Information
Ageing & Society , Volume 38 , Issue 5 , May 2018 , pp. 1063 - 1082
Copyright
Copyright © Cambridge University Press 2017 

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References

Bartlett, H. and Martin, W. 2002. Ethical issues in dementia care research. In Wilkinson, H. (ed.), The Perspectives of People with Dementia: Research Methods and Motivations. Jessica Kingsley Publishers, London.Google Scholar
Betancourt, J., Green, A., Carrillo, J. and Ananeh-Firempong, O. 2003. Defining cultural competence: a practical framework for addressing racial/cultural disparities in health and healthcare. Public Health Reports, July/August, 293–302.Google Scholar
Bowes, A. and Wilkinson, H. 2003. ‘We didn't know it would get that bad’: South Asian experiences of dementia and the service response. Health and Social Care in the Community, 11, 5, 293–302.Google Scholar
Brooker, D. 2007. Person-centred Care: Making Services Better. Jessica Kingsley Publishers, London.Google Scholar
Cartrite, B. 2009. Ethnopolitical mobilisation in the North Sea region. Unpublished paper, Alma College, Michigan.Google Scholar
Chaudhury, H. 2008. Remembering Home: Rediscovering the Self in Dementia. Johns Hopkins University Press, Baltimore, Maryland.Google Scholar
Chief Scientist's Office 2011. Governance Arrangments for NHS Research Ethics Committees in Scotland. Chief Scientist's Office, Edinburgh, UK.Google Scholar
Cohen, A. 1987. Whalsay: Symbol, Segment and Boundary in a Shetland Island Community. Manchester University Press, Manchester, UK.Google Scholar
Cox, C. 2007. Dementia and Social Work Practice. Springer, New York.Google Scholar
Culley, L. 2006. Transcending transculturalism? Race, ethnicity and healthcare. Nursing Enquiry, 13, 2, 144–53.Google Scholar
Department of Health 2009. Governance Arrangements for Research Ethics Committees: A Harmonised Edition. Department of Health, London.Google Scholar
Draper, S. 2010. The Hawthorne, Pygmalion, Placebo and Other Effects of Expectation: Some Notes. Available online at http://www.psy.gla.ac.uk/~steve/hawth.html [Accessed 10 April 2011].Google Scholar
Edvardsson, D. and Nordvall, K. 2008. Lost in the present but confident of the past; experiences of being in a psycho-geriatric unit as narrated by persons with dementia. Journal of Clinical Nursing, 17, 4, 491–8.Google Scholar
Froggatt, K., Davies, S. and Meyer, J. 2009. Understanding Care Homes: A Research and Development Perspective. Jessica Kingsley Publishers, London.Google Scholar
Glaser, K. 2007. Minority Languages and Cultural Diversity in Europe: Gaelic and Serbian Perspectives. Multilingual Matters, Clevedon, UK.Google Scholar
Hickman, M., Walter, B., Morgan, S. and Bradley, J. 2000. A Hidden Population in Multi-ethnic Britain: The Second-generation Irish. Available online at http://www.londonmet.ac.uk/research-units/iset/projects/esrc-hidden-population.cfm [Accessed 23 July 2010].Google Scholar
Kayser-Jones, J. 1990. Old, Alone and Neglected: Care of the Aged in the US and Scotland. Second edition, University of California Press, Berkeley, California.Google Scholar
Kellaher, L. 2000. A Choice Well Made: Mutuality as a Governing Principle in Residential Care. Centre for Policy on Ageing, London.Google Scholar
Kitwood, T. 1997. Dementia Reconsidered: The Person Comes First. Open University Press, Buckingham, UK.Google Scholar
Leininger, M. 1997. Transcultural nursing practice to transform nursing education and practice; 40 years. Image: Journal of Nursing Scholarship, 29, 4, 341–7.Google ScholarPubMed
Lor, P. 2011. Methodology in comparative studies. In International and Comparative Librarianship. Available online at https://peterlor.com/the-book/ [Accessed 20 February 2016].Google Scholar
Mitchison, R. 2002. A History of Scotland. Routledge, London.CrossRefGoogle Scholar
Office for National Statistics 2014. Guidance and Methodology: Ethnic Group, National Identity and Religion. Available online at http:www.ons.gov.uk/ons/guide-method/measuring-equality/equality/ethnic-nat-identity-religion/ethnic-group/index.html#10 [Accessed 16 October 2014].Google Scholar
Orulv, L. 2010. Placing the place, and placing oneself within it: (dis)orientation and (dis)continuity in dementia. Dementia: The International Journal of Social Research and Practice, 9, 1, 21–44.CrossRefGoogle Scholar
Parker, I. 1992. Discourse Dynamics: Critical Analysis for Social and Individual Psychology. Routledge, London.Google Scholar
Sabat, S. 2001. The Experience of Alzheimer's Disease: Life Through a Tangled Veil. Wiley-Blackwell, Hoboken, New Jersey.Google Scholar
Scottish Executive 2007. All Our Futures: Planning for a Scotland with an Ageing Population. Scottish Executive, Edinburgh, UK.Google Scholar
Scottish Executive 2010. Scotland's National Dementia Strategy. Scottish Executive, Edinburgh, UK.Google Scholar
Scottish Executive Health Department 2002. Fair for All; Improving the Health of Ethnic Minorities and the Wider Community in Scotland. Scottish Executive Health Department, Edinburgh, UK.Google Scholar
Shenk, D. and Groger, l. 2006. Ageing Education in a Global Context. Haworth Press, New York.Google Scholar
Spradley, J. 1979. The Ethnographic Interview. Harcourt Brace Jovanovich, New York.Google Scholar
Spradley, J. 1980. Participant Observation. Harcourt Brace Jovanovich, New York.Google Scholar
Stevenson, A. 2010. Cultural Issues in Psychology. Routledge, Hove, UK.Google Scholar
Trevor-Roper, H. 2003. The invention of tradition: the Highland tradition of Scotland. In Hobsbawm, E. (ed.), The Invention of Tradition. Cambridge University Press, Cambridge, 15–43.Google Scholar
Wolcott, H. 2008. Ethnography: A Way of Seeing. Second edition, AltaMira, New York.Google Scholar
Zumkhawala-Cook, R. 2008. Scotland As We Know It: Representations of National Identity in Literature. McFarland and Co., Jefferson, North Carolina.Google Scholar