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Lived experiences of ageing and later life in older people with intellectual disabilities

Published online by Cambridge University Press:  16 December 2013

IDA KÅHLIN ,
ANETTE KJELLBERG ,
CATHARINA NORD  and
JAN-ERIK HAGBERG
IDA KÅHLIN*
Affiliation:
National Institute for the Study of Ageing and Later Life, Department of Social and Welfare Studies, Linköping University, Sweden.
ANETTE KJELLBERG
Affiliation:
Department of Social and Welfare Studies, Faculty of Health Sciences, Linköping University, Sweden.
CATHARINA NORD
Affiliation:
National Institute for the Study of Ageing and Later Life, Department of Social and Welfare Studies, Linköping University, Sweden.
JAN-ERIK HAGBERG
Affiliation:
National Institute for the Study of Ageing and Later Life, Department of Social and Welfare Studies, Linköping University, Sweden.
*
Address for correspondence: Ida Kåhlin, National Institute for the Study of Ageing and Later Life, Department of Social and Welfare Studies, Linköping University, 601 74 Norrköping, Sweden. E-mail: [email protected]
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Abstract

The aim of this article is to explore how older people with intellectual disability (ID), who live in group accommodation, describe their lived experience in relation to ageing and later life. The article is based on a study with a phenomenological approach, grounded on the concept of life-world. Individual, qualitative interviews were conducted with 12 people with ID (five men, seven women), between the ages of 48 and 71 (mean=64), who lived in four different group accommodation units in southern Sweden. A descriptive phenomenological analysis method was used, which disclosed a structure consisting of themes and sub-themes. The findings of the study reveal the informants' lived experience of ageing and later life as a multifaceted phenomenon, expressed through the two themes, ‘age as a process of change’ and ‘existential aspects of ageing’, each with three sub-themes. The body is an essential element in their experience of ageing and growing old, and in how this experience is expressed. The study also found social, cultural and historical dimensions of the life-world to be important in the informants' experience of ageing and later life. This supports understanding of the existence of a collective life-world for older people with ID, the unique experiences the informants share because of their disability and its consequences for their lifecourse.

Keywords

intellectual disabilityageinglater lifelife-worldphenomenology
Type
Articles
Information
Ageing & Society , Volume 35 , Issue 3 , March 2015 , pp. 602 - 628
Copyright
Copyright © Cambridge University Press 2013 

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