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Informal Care of Dependent Elderly at Home — Some Swedish Experiences
Published online by Cambridge University Press: 14 November 2008
Abstract
This study is an attempt to explore the dynamics in a group of family caregivers in a small rural setting in Sweden. Thirty-nine caregivers giving extensive help to elderly family members, who were all on the verge of institutionalisation, were interviewed. The results showed that the motives of caring were usually based on feelings of reciprocity and that the perceived burden of care was related to the proximity of the carer to the person cared for. Despite the existence of a rather well-developed system of formal care, these resources were poorly coordinated with the informal provision of care.
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1 Hokenstad, M. C. and Johansson, L., Caregiving for the elderly in Sweden: program challenges and policy initiatives. In Biegel, D. and Blum, A. (eds), Aging and Caregiving. Theory, Research and Policy. Sage, London, 1990, pp. 254–69.Google Scholar
2 Thorslund, M. and Johansson, L., Elderly people in Sweden: current realities and future plans. Ageing and Society, 7 (1987), 345–55.CrossRefGoogle Scholar
3 Thorslund, M., The increasing number of very old people will change the Swedish model of welfare state. Social Science and Medicine, in press. Thorsiund, M., Kostnader för de äldres service och vǡrd. Appendix in the Pension Committee Report, SOU, 1990: 77.Google Scholar
4 Hokenstad, M. C. and Johansson, L., Swedish policy initiatives to support family caregiving for the elderly. Ageing International, 26 (1990), 33–5.CrossRefGoogle Scholar
5 Schulz, R., Theoretical perspectives on caregiving: concepts, variables and methods. In Biegel, D. and Blum, A. (eds), Aging and Caregiving. Theory, Research and Policy. Sage, London, 1990, pp. 27–52.Google Scholar
6 Abrams, P., Community care: some research problems and priorities. In Barnes, J. and Connelly, N. (eds), Social Care Research. Bedford Square Press, London, 1978, pp. 78–99.Google Scholar
7 Bulmer, M., The Social Basis of Community Care. Allen & Unwin, London, 1987.Google Scholar
8 Lewis, J. and Meredith, B., Daughters who Care. Daughters Caring for Mothers at Home. Routledge, London, 1988.Google Scholar
9 Motenko, A. K., The frustrations, gratifications and well-being of dementia caregivers. The Gerontologist, 29 (1989), 166–72.CrossRefGoogle ScholarPubMed
10 Schulz R., op. cit.
11 Ungerson, C., Policy is Personal. Sex, Gender and Informal Care. Tavistock publications, London & New York, 1987.Google Scholar
12 Finch, J., Family Obligations and Social Changes. Polity Press, Cambridge, 1989.Google Scholar
13 Allen, G., Kinship, , responsibility and care for the elderly. Ageing and Society, 8 (1988), 249–68. Lewis J. and Meredith B., op. cit.CrossRefGoogle Scholar
14 Johansson L., Thorsland M., Smedby B. and Wernberg K., Formal and informal support among elderly in a rural setting in Sweden (submitted).
15 Lee, G. R., Kinship in the seventies: a decade review of research and theory. Journal of Marriage and the Family, 42 (1980), 923–34.CrossRefGoogle Scholar
16 Atkinson, M. P., Kivett, V. R. and Campbell, R. T., Intergenerational solidarity: an examination of a theoretical model. Journal of Gerontology, 41 (1986), 408–16.CrossRefGoogle ScholarPubMed
17 Seeman, T. and Berkman, L., Structural characteristics of social networks and their relationship with social support in the elderly: who provides support? Social Science and Medicine 26 (1988), 737–45.CrossRefGoogle ScholarPubMed
18 Finley, N., Roberts, D. and Banahan, B., Motivators and inhibitors of attitudes of filial obligation toward aging parents. The Gerontologist, 28 (1988), 73–8.CrossRefGoogle ScholarPubMed
19 Finch J., op. cit.
20 Moss, M. S., Moss, S. and Moles, E. L., The quality of relationships between elderly parents and their out-of-town children. The Gerontologist, 25 (1985), 134–40.CrossRefGoogle ScholarPubMed
21 McDonough, Mercier J., Paulson, L. and Morris, E. W., Proximity as a mediating influence on the perceived aging parent–adult child relationship. The Gerontologist, 29 (1989), 785–91.Google Scholar
22 Schulz R., op. cit.
23 Ungerson C., op. cit.
24 Noelker, L. S. and Townsend, A. L., Perceived caregiving effectiveness. The impact of parental impairment, community resources, and caregiver characteristics. In Brubaker, T. (ed.), Aging, Health and Family, Long-Term Care. Sage, London, 1987.Google Scholar
25 Lewis J. and Meredith B., op. cit.
26 Brody, E., Parent care as a normative family stress. The Gerontologist, 25 (1985), 19–29.CrossRefGoogle Scholar
27 Hirschfeld, M., Home care versus institutionalisation, family caregiving and senile brain disease. International Journal of Nursing Studies, 20 (1983), 23–32.CrossRefGoogle Scholar
28 Lewis, J. and Meredith, B., op. cit.
29 Ungerson, C., op. cit.
30 Parker, G., With Due Care and Attention: A Review of Research in Informal Care. Family Policy Studies Centre, London, 1985.Google Scholar
31 Brody, E. M., ‘Women in the middle’ and family help to older people. The Gerontologist, 21 (1981), 471–80.CrossRefGoogle Scholar
32 Ungerson, C., op. cit.
33 Arber, S. and Gilbert, G. N., Transitions in caring: gender, life course and care of the elderly. In Bytheway, B.M, Keil, T., Allat, P. and Bryman, A. (eds) Becoming and Being Old. Sociological Approaches to Later Life. Sage, London, 1989, pp. 72–92.Google Scholar
34 Stoller, E. P., Males as helpers: the role of sons, relatives and friends. The Gerontologist, 30 (1990), 228–35.CrossRefGoogle ScholarPubMed
35 Yoder, J. A., Jonker, I. M. L. and Leaper, R. A. B., Support Networks in a Caring Community. Martin Nijhoff Dortrecht/Boston/Lancaster, 1985.CrossRefGoogle Scholar
36 Hicks, C., Who Cares? Looking after People at Home. Virago Press, London, 1988.Google Scholar
37 Jones, D. A. and Vetter, N. J., A survey of those who care for the elderly at home: their problems and their needs. Social Sciences and Medicine, 19 (1984), 511–14.CrossRefGoogle ScholarPubMed
38 Allen, G., op. cit.
39 Deimling, G. T. and Poulshock, S. W, The transition from family in-home care to institutional care. Research on Aging, 7 (1985), 563–76.CrossRefGoogle ScholarPubMed
40 Motenko, A. K., op. cit.
41 Zarit, S. H., Todd, P. A. and Zarit, J. M., Subjective burden of husbands and wives as caregivers: a longitudinal study. The Gerontologist, 26 (1986), 260–66.CrossRefGoogle ScholarPubMed
42 Motenko, A. K., op. cit.
43 Lawton, M. P., Kleban, M. H., Moss, M., Rovine, M. and Glicksman, A., Measuring caregiving appraisal. Journal of Gerontology, 44 (1989), 61–71.CrossRefGoogle ScholarPubMed
44 Fengler, A. P. and Goodrich, B. A., Wives of elderly disabled men: the hidden patients. The Gerontologist, 19 (1979), 175–83.CrossRefGoogle ScholarPubMed
45 Lewis, J. and Meredith, B., op. cit.
46 Arling, G. and McAuley, W. J., The feasibility of public payments for family caregiving. The Gerontologist, 23 (1983), 300–6.CrossRefGoogle ScholarPubMed
47 Doty, P., Family care of the elderly: the role of public policy. The Milbank Quarterly, 64 (1986), 34–75.CrossRefGoogle ScholarPubMed
48 Sundström, G., Family and state: recent trends in care of the aged in Sweden. Ageing and Society, 6 (1986), 169–96.CrossRefGoogle Scholar
49 Jones, D. A. and Vetter, N. J., Formal and informal support received by carers of elderly dependants. British Medical Journal, 291 (1985), 643–45.CrossRefGoogle Scholar
50 Nissel, M. and Bonnerjea, L., Family Care of the Handicapped Elderly: Who Pays? Policy Studies Institute, London, 1982.Google Scholar
51 Lewis, J. and Meredith, B., op. cit.
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