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Ageing in place together: older parents and ageing offspring with intellectual disability

Published online by Cambridge University Press:  12 August 2020

Yueh-Ching Chou Open the ORCID record for Yueh-Ching Chou [Opens in a new window]  and
Teppo Kröger Open the ORCID record for Teppo Kröger [Opens in a new window]
Yueh-Ching Chou*
Affiliation:
Institute of Health and Welfare Policy, National Yang-Ming University, Taipei, Taiwan
Teppo Kröger
Affiliation:
Department of Social Sciences and Philosophy, University of Jyväskylä, Jyväskylä, Finland
*
*Corresponding author. Email: [email protected]
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Abstract

Limited research has been conducted about ageing in place among older parents who co-habit with their ageing offspring with intellectual disability (ID). This study aims to explore which older parents would choose ageing in place together with their ageing offspring with ID instead of moving and what factors are associated with this choice. A face-to-face interview was conducted using the ‘housing pathways’ framework with older parents (⩾60 years) co-habiting with their ageing offspring with ID (⩾40 years) from two local authorities in Taiwan. In total, 237 families completed our census survey between June and September 2015. The results showed that 61.6 per cent of the participants would choose ageing in place with their ageing offspring with ID, while 38.4 per cent of the participants would stay in their previous place without their disabled children, move in with their other children or move to a nursing home. Logistic regression analyses revealed that parents who preferred ageing in place together with their offspring with ID were more likely to own a house (‘personal control’), have higher levels of life satisfaction (‘self-esteem’) and satisfaction with their current community (‘self-identity’), and have a lower level of social support than parents who chose another option. To meet the needs of older parents and their ageing offspring with ID, care and housing transitions should be considered as part of long-term care policy.

Keywords

intellectual disabilityolder parentsageing in placelong-term careHousing PathwaysTaiwan
Type
Article
Information
Ageing & Society , Volume 42 , Issue 2 , February 2022 , pp. 480 - 494
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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References

Aldwin, CM, Sutton, KJ, Chiara, G and Spiro, A III (1996) Age differences in stress, coping, and appraisal: findings from the normative aging study. Journals of Gerontology: Psychological Sciences and Social Sciences 51B, 179–189.CrossRefGoogle Scholar
Baumbusch, J, Mayer, S, Phinney, A and Baumbusch, S (2017) Aging together: caring relations in families of adults with intellectual disabilities. The Gerontologist 57, 341–347.Google ScholarPubMed
Bowers, B, Webber, R and Bigby, C (2014) Health issues of older people with intellectual disability in group homes. Journal of Intellectual & Developmental Disability 39, 261–269.CrossRefGoogle Scholar
Braddock, D, Emerson, E, Felce, D and Stancliffe, RJ (2001) Living circumstances of children and adults with mental retardation or developmental disabilities in the United States, Canada, England and Wales, and Australia. Mental Retardation and Developmental Disabilities Research Reviews 7, 115–121.CrossRefGoogle ScholarPubMed
Bradley, DE (2011) Litwak and Longino's developmental model of later-life migration: evidence from the American Community Survey, 2005–2007. Journal of Applied Gerontology 30, 141–158.CrossRefGoogle Scholar
Carroll, J and Qualls, H (2014) Moving into senior housing: adapting the old, embracing the new. Generations: Journal of the American Society on Aging 38, 42–47.Google Scholar
Chang, GL and Chang, CO (2010) Transitions in living arrangements and living preferences among elderly: an analysis from family values and exchange theory. Journal of Population Studies 40, 41–90. (In Chinese)Google Scholar
Chen, CF (2011) Management or exploitation? The survival strategy of employer of family foreign care workers. Taiwan: A Radical Quarterly in Social Studies 85, 89–155. (In Chinese)Google ScholarPubMed
Chen, S-M and Chang, C-O (2004) Mobility decision of extended families in Taipei. Journal of Social Sciences and Philosophy 16, 325–348. (In Chinese)Google Scholar
Chen, SM and Lin, PS (2010) The influence of financial support and physical care between the two generations of parents and children on living arrangements and life satisfaction. Journal of Housing Studies 19, 29–58. (In Chinese)Google Scholar
Cheng, MH, Chen, FY and Yen, CF (2004) Exploratory study of caring together in the same institutions for people with intellectual disability and the elders. Disability Studies 2, 30–43. (In Chinese)Google Scholar
Chou, YC, Lee, YC, Lin, LC, Kröger, T and Chang, AN (2009) Older and younger family caregivers of adults with intellectual disability: factors associated with future plans. Intellectual and Developmental Disabilities 47, 282–294.CrossRefGoogle ScholarPubMed
Chou, YC, Fu, L-Y, Lee, Y-C and Lin, L-C (2011) Predictors of subjective and objective caregiving burden in older female caregivers of adults with intellectual disabilities. International Psychogeriatrics 23, 562–572.CrossRefGoogle ScholarPubMed
Chou, YC, Kröger, T and Pu, CY (2015) Models of long-term care use among older people with disabilities in Taiwan: institutional care, community care, live-in migrant care and family care. European Journal of Ageing 12, 95–104.CrossRefGoogle ScholarPubMed
Chou, YC, Lee, WP and Wang, WC (2018) Care transition and moving in old age among older two-generation families: older parents, ageing offspring with intellectual disability and their siblings. NTU Social Work Review 37, 99–149 (in Chinese).Google Scholar
Clapham, D (2002) Housing pathways: a post modern analytical framework. Housing, Theory and Society 19, 57–68.CrossRefGoogle Scholar
Clapham, D (2005) The Meaning of Housing: A Pathways Approach. Bristol, UK: Policy Press.Google Scholar
Clapham, D (2010) Happiness, well-being and housing policy. Policy & Politics 38, 253–267.CrossRefGoogle Scholar
Directorate General of Budget, Accounting and Statistics of Executive Yuan, Taiwan (2006) Living Arrangements of Older People. Available at http://www.dgbas.gov.tw/public/Data/6741881271.pdf. (In Chinese)Google Scholar
Dunst, CJ, Jenkins, V and Trivette, C (1984) Family support scale: reliability and validity. Journal of Individual, Family, and Community Wellness 1, 45–52.Google Scholar
Emerson, E and Hatton, C (2004) Estimating Future Need/Demand for Supports for Adults with Learning Disabilities in England. Lancaster, UK: Lancaster University. Available at http://www.lancs.ac.uk/shm/dhr/research/learning/download/estimatingfutureneed.pdf.Google Scholar
Faulkner, D (2007) The older population and changing housing careers: implications for housing provision. Australasian Journal on Ageing 26, 152–156.CrossRefGoogle Scholar
Golant, SM (2003) Conceptualizing time and behavior in environmental gerontology: a pair of old issues deserving new thought. The Gerontologist 43, 638–648.CrossRefGoogle ScholarPubMed
Hayden, M and Heller, T (1997) Support, problem-solving/coping ability, and personal burden of younger and older caregivers of adults with mental retardation. Mental Retardation 35, 364–372.2.0.CO;2>CrossRefGoogle ScholarPubMed
Hubert, J and Hollins, S (2000) Working with elderly carers of people with learning disabilities and planning for the future. Advances in Psychiatric Treatment 6, 41–48.CrossRefGoogle Scholar
Jokinen, NS and Brown, RI (2005) Family quality of life from the perspective of older parents. Journal of Intellectual Disability Research 49, 789–793.CrossRefGoogle ScholarPubMed
Jolanki, O and Vilkko, A (2015) The meaning of a ‘sense of community’ in a Finnish senior co-housing community. Journal of Housing for the Elderly 29, 111–125.CrossRefGoogle Scholar
Litwak, E and Longino, CF (1987) Migration patterns among the elderly: a developmental perspective. The Gerontologist 27, 266–272.CrossRefGoogle ScholarPubMed
Means, R (2007) Safe as houses? Ageing in place and vulnerable older people in the UK. Social Policy & Administration 41, 65–85.CrossRefGoogle Scholar
Means, R and Evans, S (2012) Communities of place and communities of interest? An exploration of their changing role in later life. Ageing & Society 32, 1300–1318.CrossRefGoogle Scholar
Ministry of Health and Welfare, Taiwan (2018) 2016 Living Condition Survey Among People with Disabilities. Available at https://dep.mohw.gov.tw/DOS/lp-1770-113.html. (In Chinese)Google Scholar
Moore, J (2000) Placing home in context. Journal of Environmental Psychology 20, 207–217.CrossRefGoogle Scholar
Robison, JT and Moen, P (2000) A life-course perspective on housing expectations and shifts in late midlife. Research on Aging 22, 499–532.CrossRefGoogle Scholar
Schmertmann, CP, Boyd, M, Serow, W and White, D (2000) Elder-child coresidence in the United States: evidence from the 1990 census. Research on Aging 22, 23–42.CrossRefGoogle Scholar
Thompson, DJ, Ryrie, I and Wright, S (2004) People with intellectual disabilities living in generic residential services for older people in the UK. Journal of Applied Research in Intellectual Disabilities 17, 101–108.CrossRefGoogle Scholar
Tseng, LY, Chang, CO and Chen, SM (2006) An analysis on the living arrangement choices of the elderly: a discussion on intergenerational relationships. Journal of Housing Studies 15, 45–64. (In Chinese)Google Scholar
Walker, R and Hutchinson, C (2019) Caregiving dynamics and futures planning among ageing parents of adult offspring with intellectual disability. Ageing & Society 39, 1512–1527.CrossRefGoogle Scholar
Wang, WC (2011) The construction of the mode of habitation of the double-aging families and their children with intellectual disabilities. Disability Studies 19, 151–164. (In Chinese)Google Scholar
Weeks, L, Nilsson, T, Bryanton, O and Kozma, A (2009) Current and future concerns of older parents of sons and daughters with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities 6, 180–188.CrossRefGoogle Scholar
Wu, CH and Chen, YM (2014) The experiences of hiring foreign caregivers among families with a demented elderly person. Journal of Long-term Care 18, 95–112. (In Chinese)Google Scholar
Wu, SC and Chuang, KY (2001) Aging in place: the direction of Taiwan long-term care policy in the 21st century. Taiwan Journal of Public Health 20, 192–201. (In Chinese)Google Scholar
Yang, PS (2005) The institutional care for older persons and the related social services in Taiwan. Taiwanese Social Work 4, 148–169. (In Chinese)Google Scholar