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Memorabilities: enduring relationships, memories and abilities in dementia

Published online by Cambridge University Press:  18 June 2007

RAEWYN BASSETT  and
JANICE E. GRAHAM
RAEWYN BASSETT*
Affiliation:
School of Occupational Therapy, Dalhousie University, Halifax, Nova Scotia, Canada.
JANICE E. GRAHAM*
Affiliation:
Department of Bioethics, Dalhousie University, Halifax, Nova Scotia, Canada.
*
Address for correspondence: Raewyn Bassett, School of Occupational Therapy, Forrest Building, Room 215, 5869 University Avenue, Dalhousie University, Halifax, Nova Scotia B3H 3J5, Canada. E-mail: [email protected]
Janice Graham, Department of Bioethics, 5849 University Avenue, Dalhousie University, Halifax, Nova Scotia B3H 4H7, Canada. E-mail: [email protected]
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Abstract

This paper reports the findings of a one-year qualitative investigation of the memories and activities of people with mild to moderate Alzheimer's. We observed and interviewed 58 patient-carer dyads during home visits. The progression of the dementia symptoms was documented, and information was collected on social-relational events, as well as accounts of awareness, attention and anticipation, which are often neglected in research that focuses on the activities of daily living. The participants identified problems that were important to them; those with Alzheimer's disease were aware that they were not as attentive as they once had been, that they could no longer rely upon the memory of, or consciously recollect and relive, a past experience, and that the future was more difficult to anticipate. The participants' accounts describe relationships, memories and abilities – or ‘memor-abilities’ – of a past and their effects on their present and future. Our findings differ from clinical representations of memory located solely in the individual. Instead, memories are regarded as a synergistic package of both social and individual meanings that ‘leak’ between the two. What experimental psychologists interpret as systems and processes are played out in the everyday world of people with Alzheimer's disease as contextual, bounded and interdependent states of awareness, attention and anticipation. We maintain that memory is simultaneously individual and social, and that memorabilities are shared, co-constructed events and experiences in the past, present and future.

Keywords

memoryAlzheimer's diseaseawarenessanticipationqualitative methods
Type
Research Article
Information
Ageing & Society , Volume 27 , Issue 4 , July 2007 , pp. 533 - 554
Copyright
Copyright © Cambridge University Press 2007

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