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Chapter 14 - Supporting Self-Management in Early Dementia

A Contribution Towards ‘Living Well’?

from Section 3 - Approaches to Management

Published online by Cambridge University Press:  12 September 2020

By
Jo Cheffey ,
Laura Hill  and
Glenn Roberts
Edited by
Julian C. Hughes  and
Philippa Lilford
Julian C. Hughes
Affiliation:
University of Bristol
Philippa Lilford
Affiliation:
Severn Deanery, University of Bristol
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Summary

Social and demographic changes and advances in acute medicine are leading to an ageing population. Many, perhaps most, people will now live for significant periods with long-term health conditions and illness. There are over one million people with dementia currently living in the UK, at an estimated annual cost of £26.3 billion to society with the average cost being £32,250 per person per year. The estimated breakdown of this cost is £4.3 billion spent on healthcare, £10.3 billion on social care (publicly and privately funded) and £11.6 billion contributed by the work of unpaid carers of people with dementia.

Type
Chapter
Information
Clinical Topics in Old Age Psychiatry , pp. 191 - 201
Publisher: Cambridge University Press
Print publication year: 2020

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References

Prince, M, Knapp, M, Guerchet, M, et al. Dementia UK: Update Second Edition. King’s College London and London School of Economics for Alzheimer’s Society, 2014. Last accessed 13th October 2019 via: www.alzheimers.org.uk/sites/default/files/migrate/downloads/dementia_uk_update.pdfGoogle Scholar
Hill, L, Roberts, G, Wildgoose, J, Perkins, R, Hahn, S. Recovery and person-centred care in dementia: common purpose, common practice? Adv Psychiatr Treat 2010; 16: 288–98.\Google Scholar
Royal College of Psychiatrists (RCPsych). Person-Centred Care: Implications for Training in Psychiatry [CR215]. RCPsych Person-Centred Training and Curriculum (PCTC) Scoping Group and the Special Committee on Professional Practice and Ethics, 2018. Last accessed on 9 September 2019 via: www.rcpsych.ac.uk/docs/default-source/improving-care/better-mh-policy/college-reports/college-report-cr215.pdf?sfvrsn=7863b905_2.Google Scholar
Dept of Health. Prime Minister’s Challenge on Dementia 2020. London: Department of Health, 2015. Last accessed on 13 September 2019 via: www.gov.uk/government/publications/prime-ministers-challenge-on-dementia-2020Google Scholar
Kitwood, T. Dementia Reconsidered: The Person Comes First. Open University Press, 1997.Google Scholar
Kitwood, T. Positive long-term changes in dementia: some preliminary observations. J of Mental Health 1995; 4: 133–44.Google Scholar
Department of Health. No Health Without Mental Health: A Cross- government Mental Health Outcomes Strategy for People of All Ages. HM Government, 2011.Google Scholar
Antony, W. (1993) Recovery from mental illness: the guiding vision of the mental health service system in the 1990s. Psychosoc Rehabil J 1993; 16: 11–23.Google Scholar
Daley, S, Newton, D, Slade, M, Murray, J, Banerjee, S. Development of a framework for recovery in older people with mental disorder. Int J Geriatric Psychiatry 2013; 28: 522–9.Google Scholar
Repper, J, Perkins, R. Social Inclusion and Recovery. Ballière Tindall, 2003.Google Scholar
Shepherd, G, Boardman, J, Slade, M. Making Recovery a Reality. Sainsbury Centre for Mental Health, 2008.Google Scholar
Social Care Institute for Excellence (SCIE). Assessing the Mental Health Needs of Older People (Adults’ Services: SCIE Guide 03). SCIE, 2006.Google Scholar
Elwyn, G. Salzburg statement on shared decision making. Salzburg Global Seminar. BMJ 2011; 342: d1745.Google Scholar
Department of Health. Independence, Choice and Risk: A Guide to Best Practice in Supported Decision Making. Department of Health, 2007.Google Scholar
Alakeson, V, Perkins, R. Recovery, Personalisation and Personal Budgets. Centre for Mental Health, 2012.Google Scholar
Baker, E, Fee, J, Bovingdon, L, et al. From taking to using medication: recovery-focused prescribing and medicines management. Adv Psychiatr Treat 2013; 19: 2–10.Google Scholar
Department of Health. Self Care – A Real Choice. Self Care Support – A Practical Option. Department of Health, 2005.Google Scholar
Department of Health. Our Health, Our Care, Our Say. A New Direction for Community Services (White Paper). The Stationery Office, 2006.Google Scholar
Department of Health. Supporting People with Long-term Conditions to Self Care: A Guide to Developing Local Strategies and Good Practice. The Stationery Office, 2006.Google Scholar
Expert Patients Programme, Community Interest Company. Self Care Reduces Costs and Improves Health – The Evidence. Expert Patients Programme, 2010.Google Scholar
Expert Patients Programme, Community Interest Company. Healthy Lives Equalling Healthy Communities – The Social Impact of Selfmanagement. Expert Patients Programme, 2011.Google Scholar
Barlow, J, Wright, C, Sheasby, J, Turner, A, Hainsworth, J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 2002; 48: 177–87.Google Scholar
Jonker, AAGC, Comijs, HC, Knipscheer, KC, Deeg, DJ. Promotion of self-management in vulnerable older people: a narrative literature review of outcomes of the chronic disease self-management program (CDSMP). Eur J Ageing 2009; 6: 303–14.Google Scholar
Mountain, GA. Self-management for people with early dementia: an exploration of concepts and supporting evidence. Dementia 2006; 5: 429–46.Google Scholar
Mountain, GA, Craig, CL. What should be in a self-management programme for people with early dementia? Aging Ment Health 2012; 16: 576–583.Google Scholar
Reid, MC, Papaleontiou, M, Ong, A, et al. Self-management strategies to reduce pain and improve function among older adults in community settings: a review of the evidence. Pain Med 2008; 9: 409–24.Google Scholar
Laakkonen, ML, Kautiainen, H, Holtta, E, et al. Effects of self-management groups for people with dementia and their spouses – randomized controlled trial. J Am Geriatr Soc 2016; 64:752–760.Google Scholar
Craig, C. Journeying through dementia: an occupational approach to supported self-management 2017. www.journeyingthroughdementia.com (accessed 18th March 2019).Google Scholar
Department of Health. Living Well with Dementia: A National Dementia Strategy. Department of Health, 2009.Google Scholar
Slade, M. 100 Ways to Support Recovery: A Guide for Mental Health Professionals. Rethink Recovery Series: Volume 1. Rethink, 2009.Google Scholar
Substance Abuse and Mental Health Services Administration (2010) Wellness Recovery Action Plan. SAMHSA’s National Registry of Evidence-based Programs and Practices (http://nrepp.samhsa.gov/ViewIntervention.aspx?id=208). Accessed 13 March 2013.Google Scholar
Perkins, R, Rinaldi, M. Taking Back Control: Planning Your Own Recovery. South West London and St George’s Mental Health NHS Trust, 2007.Google Scholar
Copeland, ME, McKay, M. The Depression Workbook: A Guide for Living with Depression and Manic Depression. New Harbinger Publications, 1992.Google Scholar
Leamy, M, Bird, V, Le Boutillier, C, Williams, J, Slade, M. Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry 2011; 199: 445–52.Google Scholar
Mind. Life and Times of a Supermodel: The Recovery Paradigm for Mental Health. MindThink Report 3. Mind, 2008.Google Scholar
Health Foundation. Evidence: Helping People Help Themselves. Health Foundation, 2011.Google Scholar
McGorry, PD. The concept of recovery and secondary prevention in psychotic disorders. Aust N Z J Psychiatry 1992; 26: 3–17.Google Scholar
Office for National Statistics (ONS). National Population Projections: 2016-based Statistical Bulletin. ONS, 2016.Google Scholar

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