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14 - Data Protection Implications of Forensic Genealogy

A Close Look at the Use of Forensic Genealogy in Solving a Double Murder in Sweden

from Part IV - Balancing Regulation, Innovation and Ethics

Published online by Cambridge University Press:  08 September 2022

By
Dena Dervanović
Edited by
Marcelo Corrales Compagnucci ,
Michael Lowery Wilson ,
Mark Fenwick ,
Nikolaus Forgó  and
Till Bärnighausen
Marcelo Corrales Compagnucci
Affiliation:
University of Copenhagen
Michael Lowery Wilson
Affiliation:
University of Turku, Finland
Mark Fenwick
Affiliation:
Kyushu University, Japan
Nikolaus Forgó
Affiliation:
Universität Wien, Austria
Till Bärnighausen
Affiliation:
Universität Heidelberg
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Summary

This chapter examines law enforcement authorities’ growing interest in using DTC genetic test providers’ databases for solving crime. The chapter discusses the legal avenues the Swedish police authority took in their use of GEDmatch to resolve a 16-year-old double murder, discussing the legal prerequisites for such access and use as well as embarking on a exploration of the possibility of relying on the derogation of special categories of personal data being manifestly made public by the data subject and weighing possible amendments to the existing legal landscape.

Keywords

DNAdata protectionGDPRlaw enforcement directivedirect-to-consumer genetic test
Type
Chapter
Information
AI in eHealth
Human Autonomy, Data Governance and Privacy in Healthcare
 , pp. 401 - 422
Publisher: Cambridge University Press
Print publication year: 2022

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