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Chapter 19 - Wellness in Terminal Illness

from Part III - Special Populations and Special Topics

Published online by Cambridge University Press:  18 September 2020

By
Monika Chaudhry ,
Alex Gordon ,
Emile Tadros ,
Carrian Sun ,
Gabriel Tobia  and
Waguih William IsHak
Edited by
Waguih William IsHak
Waguih William IsHak
Affiliation:
Cedars-Sinai Medical Center and David Geffen School of Medicine, University of California Los Angeles (UCLA)
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Summary

In 2014, 2.6 million people died in the USA. Death is inevitable and can find someone in any number of ways, and most hope for a good death [1]. Terminal illness is an irreversible or incurable disease condition from which death is expected in the foreseeable future. Some often regulate this to a prognosis of the last 6–12 months of life; however, some live longer with a terminal illness in palliative or hospice care. Even with a terminal illness, many patients continue to receive treatment to reduce symptom burden, continue to keep fighting with experimental procedures (sometimes to give purpose), at times not to disappoint family members, and at other times it is part of their values [2]. The transition from a chronic illness to a terminal illness can be devastating for some patients, and navigating this change requires a significant amount of work from both the practitioner and the patient for a good quality of life [3].

Type
Chapter
Information
The Handbook of Wellness Medicine , pp. 237 - 247
Publisher: Cambridge University Press
Print publication year: 2020

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References

Bauchner, H, Fontanarosa, PB. Death, dying, and end of life. JAMA 2016; 315(3): 270–271.Google Scholar
Gawande, A. Quantity and quality of life duties of care in life-limiting illness. JAMA 2016 315(3): 267–269.CrossRefGoogle ScholarPubMed
Rees, S, Williams, A. Promoting and supporting self-management for adults living in the community with physical chronic illness: a systematic review of the effectiveness and meaningfulness of the patient–practitioner encounter. JBI Libr Syst Rev 2009; 7(13): 492–582.Google Scholar
Garg, R, Chauhan, V, Sabreen, B. Coping styles and life satisfaction in palliative care. Indian J Palliat Care 2018; 24(4): 491–495.Google Scholar
Steptoe, A, Deaton, A, Stone, AA. Psychological wellbeing, health and ageing. Lancet 2015; 385(9968): 640–648.CrossRefGoogle ScholarPubMed
Hanratty, B, Lowson, E, Grande, G, et al. Transitions at the end of life for older adults: patient, carer and professional perspectives – a mixed-methods study. Health Serv Deliv Res 2014; 2(17).Google Scholar
Lewis, ET, Harrison, R, Hanly, L, et al. End-of-life priorities of older adults with terminal illness and caregivers: a qualitative consultation. Health Expect 2019; 22: 405–414.CrossRefGoogle ScholarPubMed
Threapleton, DE, Chung, RY, Wong, SYS, et al. Care toward the end of life in older populations and its implementation facilitators and barriers: a scoping review. JAMDA 2017; 18: 1000e1009.Google ScholarPubMed
Abrahm, JL. Update in palliative care and end of life care. Annu Rev Med 2003; 54: 53–72.CrossRefGoogle ScholarPubMed
Katon, WJ, Lin, EH, Korff, MV, et al. Collaborative care for patients with depression and chronic illnesses. N Engl J Med 2010; 363(27): 2611–2620.Google Scholar
Frijters, P, Beatton, T. The mystery of the U-shaped relationship between happiness and age. J Econ Behav Organization 2012; 82(102): 525–542.CrossRefGoogle Scholar
Kerr, CW, Drake, J, Milch, RA, et al. Effects of methylphenidate on fatigue and depression: a randomized, double-blind, placebo-controlled trial. J Pain Symptom Manage 2012; 43(1): 68–77.Google Scholar
Strand, JJ, Kamdar, MM, Carey, EC. Top 10 things palliative care clinicians wished everyone knew about palliative care. Mayo Clin Proc 2013; 88(8): 859–865.Google Scholar
Riordan, PA, Briscoe, J, Uritsky, TJ, et al. Top ten tips palliative care clinicians should know about psychopharmacology. J Palliat Med 2019; 22: 572–579.CrossRefGoogle Scholar
Chapman, CR, Gavrin, J. Suffering and its relationship to pain. J Palliat Care 1993;9: 5–13.CrossRefGoogle ScholarPubMed
Montoya-Juarez, R, Garcia-Caro, MP, Campos-Calderon, C, et al. Psychological responses of terminally ill patients who are experiencing suffering: a qualitative study. Int J Nurs Stud 2013; 50: 53–62.CrossRefGoogle ScholarPubMed
Knight, SJ, Emanuel, L. Processes of adjustment to end-of-life losses: a reintegration model. J Palliat Med 2007; 10(5): 1190–1198.CrossRefGoogle ScholarPubMed
Kwan, CWM, Chan, CWH, Choi, KC. The effectiveness of a nurse-led short-term life review intervention in enhancing the spiritual and psychological well-being of people receiving palliative care: a mixed method study. Int J Nurs Stud 2019; 91: 134–143.Google Scholar
Montoya-Juárez, R, García-Caro, MP, Schmidt-Rio-Valle, J, et al. Suffering indicators in terminally ill children from the parental perspective. Eur J Oncol Nurs 2013; 17: 720e725.Google Scholar
Pravin, RR, Enrica, TEK, Moy, TA. The portrait of a dying child. Indian J Palliat Care 2019; 25(1): 156–160.Google ScholarPubMed
Bovero, A, Leombruni, P, Miniotti, M, et al. Spirituality, quality of life, psychological adjustment in terminal cancer patients in hospice. Eur J Cancer Care 2016; 25: 961–969.CrossRefGoogle ScholarPubMed
Renz, M, Reichmuth, O, Bueche, D, et al. Fear, pain, denial, and spiritual experiences in dying processes. Am J Hosp Palliat Care 2018; 35(3): 478–491.Google Scholar
Wnuk, M, Marcinkowski, JT. Do existential variables mediate between religious-spiritual facets of functionality and psychological wellbeing? J Relig Health 2014; 53: 56–67.Google Scholar
Park, CL. Religion as a meaning-making framework in coping with life stress. J Social Issues 2005; 61: 707–729.CrossRefGoogle Scholar
Prince-Paul, M. Understanding the meaning of social well-being at the end of life. Oncol Nurs Forum 2008; 35(3): 365–371.Google Scholar

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