Book contents
- Fetal Therapy
- Fetal Therapy
- Copyright page
- Dedication
- Contents
- Contributors
- Foreword
- Section 1: General Principles
- Section 2: Fetal Disease: Pathogenesis and Treatment
- Section III: The Future
- Chapter 53 Fetal Therapy and Translational Studies: Global Alignment, Coordination, and Collaboration in Perinatal Research – the Global Obstetrics Network (GONet) Initiative
- Chapter 54 Congenital Anomaly Registers: The European Experience
- Chapter 55 A Challenge for Prenatal Diagnosis in Developing Countries: Zika Virus as an Exemplar
- Index
- References
Chapter 54 - Congenital Anomaly Registers: The European Experience
from Section III: - The Future
Published online by Cambridge University Press: 21 October 2019
- Fetal Therapy
- Fetal Therapy
- Copyright page
- Dedication
- Contents
- Contributors
- Foreword
- Section 1: General Principles
- Section 2: Fetal Disease: Pathogenesis and Treatment
- Section III: The Future
- Chapter 53 Fetal Therapy and Translational Studies: Global Alignment, Coordination, and Collaboration in Perinatal Research – the Global Obstetrics Network (GONet) Initiative
- Chapter 54 Congenital Anomaly Registers: The European Experience
- Chapter 55 A Challenge for Prenatal Diagnosis in Developing Countries: Zika Virus as an Exemplar
- Index
- References
Summary
The importance of the accurate recording and monitoring of the occurrence of disease is well recognized. There is a long history of the establishment of disease registers and this is also the case for congenital anomaly registers. This chapter provides an overview of 2 congenital anomaly register networks, focusing on factors that lead to the successful operating of a register and the main uses of their data.
- Type
- Chapter
- Information
- Fetal TherapyScientific Basis and Critical Appraisal of Clinical Benefits, pp. 570 - 579Publisher: Cambridge University PressPrint publication year: 2020