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This chapter considers the legacy of respect for individual autonomy and ‘informed consent’ in health research. The primacy of informed consent as a safeguard has led to a systemic regulatory tendency to conceive of and protect privacy as an individual rather than a collective concern. This has limited any regulatory ability to grasp broader social concerns with the use and disclosure of data gathered and generated by health research. Any systemic failure to recognise collective interests in data, and the public interest in (non-personal) data protection, has profound implications for an information age. The chapter reflects on the value of re-negotiating the interests and expectations protected by health research regulation. It recognises the significance of Graeme Laurie’s preferred conception of privacy to enabling such negotiation, and the value of stewardship in establishing normative expectations free of historical encumbrance. Laurie’s conceptualisation of ‘privacy as separateness’, when placed alongside the idea of stewardship, may allow us to rebalance respect to encompass collective interests as fundamental to self-determination and mutual respect.
The human need for love, friendship, and physical contact, and the fear of loneliness do not diminish with age. Widowhood and late-life divorce and increased life expectancy are likely to lead to alternative relationships, such as re-partnering. The purpose of this paper is to explore interplays between emotional and physical components of re-partnering in old age
Methods:
Theoretical sampling of 20 couples included men who re-partnered at the age of 65+ years and women at the age of 60+ years, following termination of lifelong marriages due to death or divorce. Living arrangements included married or unmarried cohabitation under the same roof or in separate homes. Forty semi-structured interviews were tape-recorded and transcribed verbatim. The couple was the unit of analysis.
Results:
Interplays between physical and emotional dimensions were examined using five abductive parameters derived from data analysis resulting in a fourfold typology of emotional and physical closeness/distance in re-partnering in old age: (1) living together (physically and emotionally); (2) living apart (physically) together (emotionally); (3) living together (physically) apart (emotionally); and (4) living apart (physically and emotionally).
Conclusions:
Findings revealed types of partner relationships that are different from lifelong marriages. The typology could help professionals working with older persons regarding what to expect in re-partnering in old age and be included in developmental theories as an option in old age. A quantitative tool for research and therapy purposes, entitled The Re-partnering in Old Age Typology Scale (RPOAT Scale), based on abductive parameters, could be established for measuring re-partnering relationship quality and classifying re-partnering couples.
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