Indigenous community health outreach workers (CHWs), who serve as a
bridge between underserved, difficult-to-reach minority populations and
health professionals, can play a critical role in bringing palliative care
to patients dying of AIDS and other illnesses in the inner city. Although
the contribution of CHWs in the delivery of “curative” and
preventive services has been well established, little attention has been
given to CHWs in palliative care.
Integrating the medical literature with experiences of a team
providing HIV palliative care in the Bronx, a descriptive typology of
critical stages and components in the work of CHWs in end-of-life care in
the inner city is presented. A longitudinal case narrative, told from the
perspective of the CHW, is used to demonstrate the richness and complexity
of the CHW's role.
The article concludes with a description of the experience of the CHW,
straddling two worlds—the world of the inner city patient and the
world of the health care providers—and explores the special
characteristics of the individuals who can fill this vital role in
palliative care.