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The experiences of health and illness, death and dying, the normal and the pathological have always been an integral part of literary texts. This volume considers how the two dynamic fields of medicine and literature have crossed over, and how they have developed alongside one another. It asks how medicine, as both science and practice, shapes the representation of illness and transforms literary form. It considers how literary texts across genres and languages of disease have put forward specific conceptions of medicine and impacted its practice. Taking into account the global, multilingual and multicultural contexts, this volume systematically outlines and addresses this double-sidedness of the literature-medicine connection. Literature and Medicine covers a broad spectrum of conceptual, thematic, theoretical, and methodological approaches that provide a solid foundation for understanding a vibrant interdisciplinary field.
To describe the impact of interactions with health care professionals revealed by people’s accounts of living and dying with cancer; to explore reasons for the observed effects; and thus, to consider the implications for practice.
Background
The importance of practitioner–patient interactions is enshrined within professional values. However, our understanding of how and why the consultation impacts on outcomes remains underdeveloped. Stories recounted by people living and dying with cancer offer important insights into illness experience, including the impact of contact with health services, framed within the context of the wider social setting in which people live their lives. From our recent study of distress in primary palliative care patients, we describe how people’s accounts revealed both therapeutic and noxious effects of such encounters, and discuss reasons for the observed effects.
Method
A qualitative study with a purposive sample of 19 primary palliative care patients: (8 men, 11 at high risk of depression). In-depth interviews were analysed using the iterative thematic analysis described by Lieblich.
Findings
Living with cancer can be an exhausting process. Maintaining continuity of everyday life was the norm, and dependent on a dynamic process of balancing threats and supports to people’s emotional well-being. Interactions with health care professionals were therapeutic when they provided emotional, or narrative, support. Threats arose when the patient’s perception of the professional’s account of their illness experience was at odds with the person’s own sense of their core self and what was important to them. Our findings highlight the need for a framework in which clinicians may legitimately utilize different illness models to deliver a personalized, patient-centred assessment of need and care. The work provides testable hypotheses supporting development of understanding of therapeutic impact of the consultation.
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