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This Element considers health misinformation and the problems it presents. The evolving communication context—changing doctor-patient relationships and developments in information technology—presents patients with a vastly enriched information landscape and new challenges to patients navigating it. These challenges are magnified as growing patient empowerment and autonomy have increased expectations for patient involvement in medical decisions. In this context, the ways people approach presented information, learn from it, understand it, and use it, exacerbate the risk that they become misinformed—believing things that are inimical to improved health. Moreover, these same processes make it difficult to correct such beliefs. Approaches building on trust between patient and professional exemplify improved communication to increase accurate patient knowledge and understanding in the service of better health. This title is also available as Open Access on Cambridge Core.
Most research examining the impact of patients seeking online health information treats internet information homogenously, rather than recognizing that there are multiple types and sources of available information. The present research was conducted to differentiate among sources and types of internet information that patients search for, intend to discuss with their doctors, and recall discussing with their doctors, and to determine how accurate and hopeful patients rate this information.
Methods:
We surveyed 70 breast cancer patients recruited from the waiting rooms of breast medical oncology and surgery clinics. The main variables in the study were as follows: (1) the sources and types of online information patients have read, intended to discuss, and actually discussed with their doctors, and (2) how accurately and hopefully they rated this information to be.
Results:
Patients read information most frequently from the websites of cancer organizations, and most often about side effects. Patients planned to discuss fewer types of information with their doctors than they had read about. They most often intended to discuss information from cancer organization websites or WebMD, and the material was most often about alternative therapies, side effects, and proven or traditional treatments. Some 76.8% of total participants rated the information they had read as very or somewhat accurate, and 61% rated the information they had read as very or somewhat hopeful.
Significance of Results:
Internet information varies widely by source and type. Differentiating among sources and types of information is essential to explore the ways in which online health information impacts patients' experiences.
This chapter focuses on a few excellent health websites and on techniques for evaluating other health information sites we may find in our explorations. It helps us become comfortable conducting an online health information search, learn to explore and become familiar with several reliable health websites, and understand and apply evaluation techniques to unfamiliar health websites. Genetics home reference contains consumer information about genetic conditions and the genes or chromosomes responsible for those conditions. Household products database contains information about thousands of brand-name household products and their potential health effects. Consumers have access to more medical information than ever before. The Web and its sophisticated search tools have resulted in a greater number of patients accessing Internet health information. The best way to find health information on the Web is to go to the sites we know have reliable, accurate, current, and unbiased information.
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