Hostname: page-component-586b7cd67f-g8jcs Total loading time: 0 Render date: 2024-11-30T17:49:37.908Z Has data issue: false hasContentIssue false

Re-Claiming Disability: Identity, Procedural Justice, and the Disability Determination Process

Published online by Cambridge University Press:  27 December 2018

Abstract

This research highlights the crucial role of an intimate link between a disabled person's self-identity and the perceived fairness of legal procedures. In doing so, it brings to the foreground a wholly ignored aspect of procedural justice. Earlier researchers have failed to delve into the role identity politics plays in the relationship between the institutions and the beneficiaries of their services, and the way different members of a group understand and define themselves. This research explores the way people with disabilities in the United States, with different kinds of disability identities, experience and evaluate the procedure of claiming Social Security benefits. The findings suggest that disabled people who identified with the social model of disability (as opposed to the medical-individual models) hold a critical view of the procedure for retaining benefits. They felt they had no control over it, could not voice their opinions, were mistreated by representatives, and had to present an image that was not necessarily true of their disability. They also saw the procedure as discouraging them from participating fully in the labor market, and consequently integrating better in society, an idea that was not present among disabled people who identify with medical-individual models. Exposing this relationship between the way people perceive themselves and the way they experience and evaluate legal procedures can contribute to the creation of better policies, while improving communication between the state and members of the disability community, along with other marginalized groups.

Type
Articles
Copyright
Copyright © American Bar Foundation, 2017 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

References

Albrecht, Gary L. 2010 . The Sociology of Disability: Historical Foundations and Future Directions. In Handbook of Medical Sociology, 6th ed., ed. Bird, Chloe E., Conrad, Peter, Fermont, Allen M., and Timmermans, Stephen, 192209. Nashville, TN: Vanderbilt University Press.Google Scholar
Alfieri, Anthony V. 1991. Disabled Clients, Disabling Lawyers. Hastings Law Journal 43:769851.Google Scholar
Anderson, Eloise, Jason, Turner, and Richard, Burkhauser. 2013. Reforming Disability. Paper presented at Social Security Disability: Time for Reform—A Social Security Board Forum, March 8, in Washington, DC. http://nebula.wsimg.com/67d550972ab8cfada1df70e71f6136de?AccessKeyId=EEB98E648E3097DCA50D&disposition=0&alloworigin=1 (accessed February 7, 2016).Google Scholar
Areheart, Bradley A. 2008. When Disability Isn't Just Right: The Entrenchment of the Medical Model of Disability and the Goldilocks Dilemma. Indiana Law Journal 83:181232.Google Scholar
Arikan, Gizem, and Ben‐Num Bloom, Pazit. 2015. Social Values and Cross‐National Differences in Attitudes Towards Welfare. Political Studies 63:431–48.Google Scholar
Armstrong, Thomas. 2010. Neurodiversity: Discovering the Extraordinary Gifts of Autism, ADHD, Dyslexia, and Other Brain Differences. Cambridge, MA: Da Capo Lifelong Books.Google Scholar
Asch, Adrienne. 2001. Critical Race Theory, Feminism, and Disability: Reflections on Social Justice and Personal Identity. Ohio State Law Journal 62:391423.Google Scholar
Asimow, Michael. 2013 . Inquisitorial Adjudication and Mass Justice in American Administrative Law. In The Nature of Inquisitorial Processes in Administrative Regimes: Global Perspectives, ed. Jacobes, Laverne and Baglay, Sasha, 93112. Farnham, UK: Ashgate.Google Scholar
Bagenstos, Samuel R. 2009. Law and the Contradictions of the Disability Rights Movement. New Haven, CT: Yale University Press.Google Scholar
Barnes, Colin. 2014. Disability, Disability Studies and the Academy. In Disabling Barriers—Enabling Environments, 3rd ed., ed. Swain, John, French, Sally, Barnes, Colin, and Thomas, Carol, 1724. London: Sage.Google Scholar
Barnes, Jeb, and Thomas, F. Burke, . 2015. How Policy Shapes Politics: Rights, Courts, Litigation, and the Struggle Over Injury Compensation. New York: Oxford University Press.Google Scholar
Bell, Chris. 2010. Is Disability Studies Actually White Disability Studies? In The Disability Studies Reader, 3rd ed., ed. Davis, Lennard J., 374–82. London: Routledge.Google Scholar
Berkowitz, Edward D., and Wolff, Wendy. 1986. Disability Insurance and the Limits of American History . Public Historian 8:6582.Google Scholar
Blader, Steven L., and Tyler, Tom R. 2003. A Four‐Component Model of Procedural Justice: Defining the Meaning of a “Fair” Process. Personality and Social Psychology Bulletin 29:747–58.Google Scholar
Bloch, Frank S. 2003. Three Steps and You're Out: The Misuse of the Sequential Evaluation Process in Child SSI Disability Determination. University of Michigan Journal of Law Reform 37:3994.Google Scholar
Boursiquot, Bernice, and Brault, Matthew. 2013. Disability Characteristics of Income‐Based Government Assistance Recipients in the United States: 2011. Washington, DC: US Census Bureau. http://www.census.gov/prod/2013pubs/acsbr11-12.pdf (accessed January 3, 2016).Google Scholar
Brandt, Dian E., Houtenville, Andrew J., Huynh, Minh T., Chan, Leighton, and Rasch, Elizabeth K. 2011. Connecting Contemporary Paradigms to the Social Security Administration's Disability Evaluation Process. Journal of Disability Policy Studies 20:113.Google Scholar
Brown, Wendy. 1993. Wounded Attachments. Political Theory 21:390410.Google Scholar
Broyer, Nili. 2011. Becoming Disabled: Knowledge and Truth. Postscript: Journal of Graduate Criticism and Theory 8:3462. http://journals.library.mun.ca/ojs/index.php/postscript/article/view/287/169 (accessed January 3, 2016).Google Scholar
Brueggemann, Brenda Jo. 2009. Deaf Subjects: Between Identities and Places. New York: New York University Press.Google Scholar
Campbell, Fiona A. Kumari. 2008. Exploring Internalized Ableism Using Critical Race Theory. Disability & Society 23 (2): 151–62.Google Scholar
Charlton, James I. 2000. Nothing About Us Without Us—Disability Oppression and Empowerment. Oakland, CA: University of California Press.Google Scholar
Condeluci, Al. 1995. Interdependence: The Route to Community, 2nd ed. Boca Raton, FL: CRC Press.Google Scholar
Cooley, Charles Horton. [1909] 2005. Social Organization: A Study of a Larger Mind, 4th ed. Piscataway, NJ: Transaction.Google Scholar
Crenshaw, Kimberlé. 1991. Mapping the Margins: Intersectionality, Identity Politics, and Violence Against Women of Color. Stanford Law Review 43:1241–99.Google Scholar
Darling, Rosalyn Benjamin. 2003. Toward a Model of Changing Disability Identity: A Proposed Typology and Research Agenda. Disability & Society 18:881–95.Google Scholar
Darling, Rosalyn Benjamin, and Heckert, D. Alex. 2010a. Activism, Models, Identities and Opportunities: A Preliminary Test of a Typology of Disability Orientations. In Disability as a Fluid State, ed. Barnartt, Sharon, 203–29. Bingley, UK: Emerald Group.Google Scholar
Darling, Rosalyn Benjamin, and Heckert, D. Alex. 2010b. Orientations Towards Disability: Differences Over the Lifecourse. International Journal of Disability, Development and Education 57:131–43.Google Scholar
Davis, Lennard J. 2010 . Constructing Normalcy. In The Disability Studies Reader, 3rd ed., ed. Davis, Lennard J., 319. London: Routledge.Google Scholar
Deutsch, Morton. 2006 . Justice and Conflict. In The Handbook of Conflict Resolution: Theory and Practice, 2nd ed., ed. Deutsch, Morton and Coleman, Peter T., 4368. San Francisco, CA: Jossey‐Bass.Google Scholar
Disability Statistics and Demographics Rehabilitation and Research Training Center. 2014. Annual Disability Statistics Compendium. Durham, NH: University of New Hampshire, Institute on Disability. http://www.disabilitycompendium.org/docs/default-source/2014-compendium/2014_compendium.pdf (accessed July 4, 2015).Google Scholar
Drum, Charles E. 2009. Models and Approaches to Disability. In Disability and Public Health, ed. Drum, Charles E., Krahn, Gloria L., and Bersani, Hank, Jr., 2745. Washington, DC: American Public Health Association.Google Scholar
Emens, Elizabeth F. 2012. Framing Disability. University of Illinois Law Review 2012:13831442.Google Scholar
Engel, David M., and Munger, Frank W. 2003. Rights of Inclusion: Law and Identity in the Life Story of Americans with Disabilities. Chicago, IL: University of Chicago Press.Google Scholar
Galanter, Marc. 1974. Why the “Haves” Come Out Ahead: Speculations on the Limits of Legal Change. Law & Society Review 9:95160.Google Scholar
Giddens, Anthony. 1991. Modernity and Self Identity: Self and Society in the Late Modern Age. Stanford, CA: Stanford University Press.Google Scholar
Goodley, Dan. 2011. Disability Studies—An Interdisciplinary Introduction. London: Sage.Google Scholar
Hensler, Deborah R. 2003. Money Talks: Searching for Justice Through Compensation for Personal Injury and Death. DePaul Law Review 53:417–55.Google Scholar
Heyer, Katharina. 2007. A Disability Lens on Sociolegal Research: Reading Rights of Inclusion from a Disability Studies Perspective. Law & Social Inquiry 32:261–93.Google Scholar
Heyer, Katharina. 2015. Rights Enabled: The Disability Revolution, from the US, to Germany and Japan, to the United Nations. Ann Arbor, MI: University of Michigan Press.Google Scholar
Huberfeld, Nicole, and Roberts, Jessica L. Forthcoming. An Empirical Perspective on Medicaid as Social Insurance. University of Toledo Law Review. http://papers.ssrn.com/sol3/papers.cfm?abstract_id=2532495 (accessed January 3, 2016).Google Scholar
Hughes, Bill. 2014. Disability and the Body. In Disabling Barriers—Enabling Environments, 3rd ed., ed. Swain, John, French, Sally, Barnes, Colin, and Thomas, Carol, 5562. London: Sage.Google Scholar
Jankowski, Katherine A. 1997. Deaf Empowerment: Emergence, Struggle and Rhetoric. Washington, DC: Gallaudet University Press.Google Scholar
Jolowicz, J. A. 2003. Adversarial and Inquisitorial Models of Civil Procedure. International and Comparative Law Quarterly 52 (2): 281–95.Google Scholar
Kanter, Arlene S. 2011. The Law: What's Disability Studies Got to Do with It or an Introduction to Disability Legal Studies. Columbia Human Rights Law Review 42:403–79.Google Scholar
Lane, Harlan. 2010 . Construction of Deafness. In The Disability Studies Reader, 3rd ed., ed. Davis, Lennard J., 7793. London: Routledge.Google Scholar
Lawson, John. 2001. Disability as a Cultural Identity. International Studies in Sociology of Education 11 (2): 203–22.Google Scholar
Lind, E. Allan, and Tyler, Tom R. 1988. The Social Psychology of Procedural Justice. New York: Springer.Google Scholar
Lind, E. Allan, Kanfer, Ruth, and Earley, Christopher P. 1990. Voice, Control, and Procedural Justice: Instrumental and Noninstrumental Concerns in Fairness Judgments. Journal of Personality & Social Psychology 59:952–59.Google Scholar
Lind, E. Allan, MacCoun, Robert J., Ebener, Patricia, Felstiner, William L. F., Hensler, Deborah R., Resnick, Judith, and Tyler, Tom R. 1990. In the Eye of the Beholder: Tort Litigants' Evaluations of Their Experiences in the Civil Justice System. Law & Society Review 24:953–96.Google Scholar
Linton, Simi. 1998. Claiming Disability: Knowledge and Identity. New York: New York University Press.Google Scholar
Linton, Simi. 2005. What Is Disability Studies? PMLA 120:518–22.Google Scholar
Little, Deborah L. 2010. “Sit Home and Collect the Check”: Race, Class and the Social Construction of Disability Identity. In Disability as a Fluid State, ed. Barnartt, Sharon, 183202. Bingley, UK: Emerald Group.Google Scholar
LoBianco, Anthony F., and Sheppard‐Jones, Kathy. 2007. Perceptions of Disability as Related to Medical and Social Factors, Journal of Applied Social Psychology 37:113.Google Scholar
Longmore, Paul K. 2003. Why I Burned My Book and Other Essays on Disability. Philadelphia, PA: Temple University Press.Google Scholar
Malhotra, Ravi, and Rowe, Morgan. 2013. Exploring Disability and Disability Rights Through Narratives: Finding a Voice of Their Own. London: Routledge.Google Scholar
Mashaw, Jerry L. 1984. Bureaucratic Justice: Managing Social Security Disability Claims. New Haven, CT: Yale University Press.Google Scholar
Michalko, Rod. 2002. The Difference that Disability Makes. Philadelphia, PA: Temple University Press.Google Scholar
Minow, Martha. 1990. Making All the Difference: Inclusion, Exclusion, and American Law. Ithaca, NY: Cornell University Press.Google Scholar
Moorhead, Lorena. 2003. Coffee in the Cereal: The First Year with Multiple Sclerosis. Tucson, AZ: Pathfinder.Google Scholar
Mor, Sagit. 2006. Between Charity, Welfare, and Warfare: A Disability Legal Studies Analysis of Privilege and Neglect in Israeli Disability Policy. Yale Journal of Law & the Humanities 18 (2): 63138.Google Scholar
Mor, Sagit. 2011. Disability and the Persistence of Poverty: Reconstructing Disability Allowances. Northwestern Journal of Law & Social Policy 6 (1): 178214.Google Scholar
Nagi, Saad Z. 1991. Disability Concepts Revisited: Implications for Prevention. In Disability in America: Toward a National Agenda for Prevention, ed. Pope, Andrew M. and Tarlov, Alvin R., 309–27. Washington, DC: National Academies Press.Google Scholar
Nario‐Redmond, Michelle R., Noel, Jeffery G., and Fern, Emily. 2013. Redefining Disability, Re‐Imagining the Self: Disability Identification Predicts Self‐Esteem and Strategic Responses to Stigma. Self & Identity 12 (5): 468–88.Google Scholar
National Bureau of Economic Research. n.d. The Growth in the Social Security Disability Insurance Rolls. http://www.nber.org/bah/fall06/w12436.html (accessed July 4, 2015).Google Scholar
Okimoto, Tyler G., and Wrzesniewski, Amy. 2012. Effort in the Face of Difference: Feeling Like a Non‐Prototypical Group Member Motivates Effort. European Journal of Social Psychology 42 (5): 628–39.Google Scholar
Oliver, Michael. 1986. Social Policy and Disability: Some Theoretical Issues. Disability, Handicap & Society 1:517.Google Scholar
Oliver, Michael. 1990. The Politics of Disablement: A Sociological Approach. New York: St. Martin's Press.Google Scholar
Oliver, Michael. 1996. Understanding Disability: From Theory to Practice. New York: Macmillan.Google Scholar
Olney, Marjorie F., and Brockelman, Karin F. 2003. Out of the Disability Closet: Strategic Use of Perception Management by Select University Students with Disabilities. Disability & Society 18:3550.Google Scholar
Parliamentary Committee on Palliative and Compassionate Care. 2015. NOT TO BE FORGOTTEN: Re‐Writing the Disability Chapter in Canada: A Functional, Forward‐Looking Approach. Report of the Parliamentary Committee, Ottawa, ON. http://pcpcc-cpspsc.com/wp-content/uploads/2015/03/FinalDisability.March20.2015.pdf (accessed January 21, 2016).Google Scholar
Parsons, Talcott. 2013. The Social System, 2nd ed., ed. Bryan, Turner S. London: Routledge.Google Scholar
Relis, Tamara. 2002 . Civil Litigation from Litigants' Perspectives: What We Know and What We Don't Know About the Litigation Experience of Individual Litigants. In Studies in Law, Politics and Society 25, ed. Sarat, Austin and Ewick, Patricia, 151212. Bingley, UK: Emerald Group Publishing.Google Scholar
Ribet, Beth. 2010. Surfacing Disability Through a Critical Race Theoretical Paradigm. Georgetown Journal of Law & Modern Critical Race Perspectives 2:209–56.Google Scholar
Rovner, Laura L. 2001. Perpetuating Stigma: Client Identity in Disability Rights Litigation. Utah Law Review 2001 (2): 247318.Google Scholar
Samuels, Ellen. 2014. Fantasies of Identification: Disability, Gender, Race. New York: New York University Press.Google Scholar
Scheman, Naomi. 1997. Queering the Center by Centering the Queer: Reflections on Transsexuals and Secular Jews. In Feminists Rethink the Self, ed. Tietjens Meyers, Diana, 124–62. Boulder, CO: Westview Press.Google Scholar
Schweik, Susan M. 2009. The Ugly Laws: Disability in Public. New York: New York University Press.Google Scholar
Scotch, Richard K. 1989. Politics and Policy in the History of the Disability Rights Movement. Milbank Quarterly 67:380400.Google Scholar
Shakespeare, Tom. 2010. The Social Model of Disability. In The Disability Studies Reader, 3rd ed., ed. Davis, Lennard J., 266–73. London: Routledge.Google Scholar
Shakespeare, Tom. 2012. Still a Health Issue. Disability & Health Journal 5:129–31.Google Scholar
Shapiro, Joseph P. 1994. No Pity: People with Disabilities Forging a New Civil Rights Movement. Portland, OR: Broadway Books.Google Scholar
Smith, Armantine M. 2003. Persons with Disabilities as a Social and Economic Underclass. Kansas Journal of Law & Public Policy 12:1368.Google Scholar
Social Security Administration. 2014. Listing of Impairments. http://www.ssa.gov/disability/professionals/bluebook/listing-impairments.htm (accessed July 4, 2015).Google Scholar
Social Security Advisory Board. 2003. The Social Security Definition of Disability. http://www.ssab.gov/portals/0/DisabilityForum/Social%20Security%20Definition%20Of%20Disability.pdf (accessed January 3, 2016).Google Scholar
Solomon, Andrew. 2012. Far from the Tree: Parents, Children, and the Search of Identity. Southern Pines, NC: Scribner.Google Scholar
Soss, Joe. 2000. Unwanted Claims: The Politics of Participation in the U.S. Welfare System. Ann Arbor: University of Michigan Press.Google Scholar
Soss, Joe, and Keiser, Lael R. 2006. The Political Roots of Disability Claims: How State Environments and Policies Shape Citizen Demands. Political Research Quarterly 59:133–48.Google Scholar
Stein, Michael Ashley, and Waterston, Michael E. 2006. Disability, Disparate Impact and Class Actions. Duke Law Journal 56:861922.Google Scholar
Stone, Deborah A. 1984. The Disabled State. Philadelphia, PA: Temple University Press.Google Scholar
Straus, Joseph N. 2010 . Autism as Culture. In The Disability Studies Reader, 3rd ed., ed. Davis, Lennard J., 535–62. London: Routledge.Google Scholar
Taylor, Charles. 1989. Sources of the Self: The Making of the Modern Identity. Cambridge, MA: Harvard University Press.Google Scholar
tenBroek, Jacobus, and Matson, Floyd W. 1966. The Disabled and the Law of Welfare. California Law Review 54:809–40.Google Scholar
Thomas, Carol. 2014. Disability and Impairment. In Disabling Barriers—Enabling Environments, 3rd ed., ed. Swain, John, French, Sally, Barnes, Colin, and Thomas, Carol, 916. London: Sage.Google Scholar
Thrill, Cate. 2015. Listening for Policy Change: How the Voices of Disabled People Shaped Australia's National Disability Insurance Scheme. Disability & Society 30 (1): 1528.Google Scholar
Tyler, Tom R., and Blader, Steven L. 2003. The Group Engagement Model: Procedural Justice, Social Identity, and Cooperative Behavior. Personality & Social Psychology Review 7:349–61.Google Scholar
Tyler, Tom R., and Lind, E. Allan. 2000. Procedural Justice. In Handbook of Justice Research in Law, ed. Sanders, Joseph and Hamilton, V. Lee, 6592. New York: Springer.Google Scholar
US Census Bureau. 2012. Nearly 1 in 5 People Have a Disability in the US. Census Bureau Reports, news release, July 25. https://www.census.gov/newsroom/releases/archives/miscellaneous/cb12-134.html (accessed July 4, 2015).Google Scholar
Verkuil, Paul, and Jeffrey, Lubbers. 2003. Alternative Approaches to Judicial Review of Social Security Disability Cases. Administrative Law Review 55:731–85.Google Scholar
Watson, Amy C., and Angell, Beth. 2007. Applying Procedural Justice Theory to Law Enforcement's Response to Persons with Mental Illness. Psychiatric Services 58:787–93.Google Scholar
Watson, Amy C., and Angell, Beth. 2013. The Role of Stigma and Uncertainty in Moderating the Effect of Procedural Justice on Cooperation and Resistance in Police Encounters with Persons with Mental Illness. Psychology, Public Policy & Law 19:3039.Google Scholar
Watson, Nick. 2002. Well, I Know This Is Going to Sound Very Strange to You, But I Don't See Myself as a Disabled Person: Identity and Disability. Disability & Society 17:509–27.Google Scholar
Weber, Mark C. 2009. Disability Rights, Disability Discrimination, and Social Insurance. Georgia State University Law Review 25:575606.Google Scholar
Welsh, Nancy A. 2001. Making Deals in Court‐Connected Mediation: What's Justice Got to Do with It? Washington University Law Quarterly 79:787862.Google Scholar
Wendell, Susan. 1996. The Rejected Body: Feminist Philosophical Reflections on Disability. London: Routledge.Google Scholar
Wendell, Susan. 2010. Toward a Feminist Theory of Disability. In The Disability Studies Reader, 3rd ed., ed. Davis, Lennard J., 336–52. London: Routledge.Google Scholar
Wing, Adrien Katherine. 2005. Examining the Correlation Between Disability and Poverty: A Comment from a Critical Race Feminist Perspective—Helping the Joneses to Keep Up! Journal of Gender, Race & Justice 8:655–66.Google Scholar
Winter, Jerry Alan. 2003. The Development of the Disability Rights Movement as a Social Problem Solver. Disability Studies Quarterly 23:3361.Google Scholar
Wolbring, George. 2008. The Politics of Ableism. Development 51:252–58. http://www.palgrave-journals.com/development/journal/v51/n2/pdf/dev200817a.pdf (accessed January 3, 2016).Google Scholar
World Health Organization. 2002. Towards a Common Language for Functioning, Disability and Health: ICF. http://www.who.int/classifications/icf/training/icfbeginnersguide.pdf (accessed January 3, 2016).Google Scholar
Wrigley, Owen. 1996. The Politics of Deafness. Washington, DC: Gallaudet University Press.Google Scholar
Zaidi, Asghar and Burchardt, Tania. 2005. Comparing Incomes When Needs Differ: Equalization for the Extra Costs of Disability in the UK. Review of Income and Wealth 51:89114.Google Scholar
Zola, Irving Kenneth. 1993. Disability Statistics, What We Count and What It Tells Us—A Personal and Political Analysis. Journal of Disability Policy Studies 4:939.Google Scholar
Social Security Act, 42 U.S.C. § 901 (1935).Google Scholar
Social Security Act, 42 U.S.C. § 423 (2000).Google Scholar
Social Security Act, 42 U.S.C. § 901 (1935).Google Scholar
Social Security Act, 42 U.S.C. § 423 (2000).Google Scholar