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A Social Justice Framework for Health and Science Policy

Published online by Cambridge University Press:  16 August 2011

RUTH FADEN  and
MADISON POWERS
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Extract

The goal of this article is to explore how a social justice framework can help illuminate the role that consent should play in health and science policy. In the first section, we set the stage for our inquiry with the important case of Henrietta Lacks. Without her knowledge or consent, or that of her family, Mrs. Lacks’s cells gave rise to an enormous advance in biomedical science—the first immortal human cell line, or HeLa cells.

Type
Special Section: From Informed Consent to No Consent?
Information
Cambridge Quarterly of Healthcare Ethics , Volume 20 , Issue 4 , October 2011 , pp. 596 - 604
Copyright
Copyright © Cambridge University Press 2011

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References

1. Skloot, R.The Immortal Life of Henrietta Lacks. New York: Crown; 2010.Google Scholar

2. See note 1, Skloot 2010:30.

3. Barnes, J, ed. The Complete Works of Aristotle: The Revised Oxford Translation, Volumes I and II. Princeton (NJ): Princeton University Press; 1984.Google Scholar

4. Murphy, MC. Natural Law in Jurisprudence and Politics. Cambridge: Cambridge University Press; 2006:61–90, 168–76.CrossRefGoogle Scholar

5. A fuller explication of each appears in chapter 2 of Powers M, Faden, R. Social Justice: The Moral Foundations of Public Health and Health Policy. New York: Oxford University Press; 2008.Google Scholar

6. All citations of Mill are from Collini S, ed. J. S. Mill: On Liberty and Other Writings. Cambridge: Cambridge University Press; 2007. The arguments in this section are drawn from sections of a book manuscript in progress by Madison Powers on accounts of freedom in Mill.

7. See note 6, Collini 2007:77.

8. See note 6, Collini 2007:13.

9. See note 6, Collini 2007:75.

10. See note 6, Collini 2007:95.

11. Faden, RR, Geller, G, Powers, M.AIDS, Women, and the Next Generation: Towards a Morally Acceptable Public Policy for HIV Testing of Pregnant Women and Newborns. New York: Oxford University Press; 1991.Google Scholar

12. See note 11, Faden, Geller, Powers 1991.