Book contents
- Sharing Linked Data for Health Research
- Cambridge Bioethics and Law
- Sharing Linked Data for Health Research
- Copyright page
- Epigraph
- Contents
- Figures
- Tables
- Foreword
- Acknowledgements
- Abbreviations
- Introduction
- Part I Context for Decision Making
- Part II Frameworks for Decision Making
- 4 Human Rights
- 5 Research Ethics
- 6 Law
- Part III Practice and Process of Decision Making
- Glossary
- Index
- Cambridge Bioethics and Law
5 - Research Ethics
from Part II - Frameworks for Decision Making
Published online by Cambridge University Press: 02 June 2022
Book contents
- Sharing Linked Data for Health Research
- Cambridge Bioethics and Law
- Sharing Linked Data for Health Research
- Copyright page
- Epigraph
- Contents
- Figures
- Tables
- Foreword
- Acknowledgements
- Abbreviations
- Introduction
- Part I Context for Decision Making
- Part II Frameworks for Decision Making
- 4 Human Rights
- 5 Research Ethics
- 6 Law
- Part III Practice and Process of Decision Making
- Glossary
- Index
- Cambridge Bioethics and Law
Summary
Chapter five describes the ethical framework regulating research using linked data and examines the applicable international ethics guidelines. A hypothetical research project is used to compare how these guidelines address the ethical assessment of research using linked data and in particular to compare how they address a waiver of consent and the extent to which they consider collective interests. The chapter goes on to discuss how the core ethical values of research merit and integrity, justice, beneficence, and respect can be reinterpreted to encompass the ethical concerns raised by research using linked data.
- Type
- Chapter
- Information
- Sharing Linked Data for Health ResearchToward Better Decision Making, pp. 106 - 130Publisher: Cambridge University PressPrint publication year: 2022