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Chapter 18 - Patient Involvement in Medical Research

Published online by Cambridge University Press:  04 August 2017

By
Annette Briley  and
Claire Singh
Edited by
P. M. Shaughn O'Brien  and
Fiona Broughton Pipkin
P. M. Shaughn O'Brien
Affiliation:
Keele University School of Medicine
Fiona Broughton Pipkin
Affiliation:
University of Nottingham
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Information
Introduction to Research Methodology for Specialists and Trainees , pp. 150 - 158
Publisher: Cambridge University Press
Print publication year: 2017

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References

References

De Koning, K, Martin, M. (eds). 1996. Participatory Research in Health: Issues and experiences. Zed Books. London.Google Scholar
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McNeill, PM. 1998. Experimentation on Human Beings. In Kuhse, H, Singer, P. (eds). A Companion to Bioethics, pp. 369–78. Blackwell Publishing, Oxford.Google Scholar
Oliver, S, Clarke-Jones, L, Rees, R, et al. 2004. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Heath Technology Assessment 8:1–148.Google Scholar
Boote, J., Telford, R, Cooper, C. 2002. Consumer involvement in health research: A review and research agenda. Health Policy 61(2): 213–36.Google Scholar
Oliver, S, Rees, R, Clarke-Jones, L, et al. 2008. A multidimensional conceptual framework for analyzing public involvement in health services research. Health Expectation 11(1); 72–84.Google Scholar
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Jama, D, Dugdale, G. 2012. Literacy: State of the Nation. A picture of literacy in the UK today, National Literacy Trust.Google Scholar
INVOLVE. 2012. Briefing notes for researchers: involving the public in NHS, public health and social care research. INVOLVE, Eastleigh.Google Scholar
Freedom of Information Act 2000: www.legislation.gov.uk/ukpga/2000/36/pdfs/ukpga_20000036_en.pdfGoogle Scholar
Caldicott Guidelines 2013: www.gov.uk/government/uploads/system/uploads/attachment_data/file/251750/9731-2901141-TSO-Caldicott-Government_Response_ACCESSIBLE.PDFGoogle Scholar
Data Protection Act 1988: www.legislation.gov.uk/ukpga/1998/29/pdfs/ukpga_19980029_en.pdfGoogle Scholar
Hamer, S. 2013. Strategic priorities for the NIHR CRN Clinical Research Nurse Workforce, 2013/2014: www.nihr.ac.uk/Google Scholar
Caldicott Guidelines 2013: www.gov.uk/government/uploads/system/uploads/attachment_data/file/251750/9731-2901141-TSO-Caldicott-Government_Response_ACCESSIBLE.PDFGoogle Scholar
Data Protection Act 1988: www.legislation.gov.uk/ukpga/1998/29/pdfs/ukpga_19980029_en.pdfGoogle Scholar
Hamer, S. 2013. Strategic priorities for the NIHR CRN Clinical Research Nurse Workforce, 2013/2014: www.nihr.ac.uk/Google Scholar

Additional Sources

Caldicott Guidelines 2013: www.gov.uk/government/uploads/system/uploads/attachment_data/file/251750/9731-2901141-TSO-Caldicott-Government_Response_ACCESSIBLE.PDFGoogle Scholar
Data Protection Act 1988: www.legislation.gov.uk/ukpga/1998/29/pdfs/ukpga_19980029_en.pdfGoogle Scholar
Hamer, S. 2013. Strategic priorities for the NIHR CRN Clinical Research Nurse Workforce, 2013/2014: www.nihr.ac.uk/Google Scholar

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