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If the arguments of the preceding chapters are to be practically useful, it is necessary to move beyond claims about ‘personal bioinformation’ as a broad category, to locate how and why different bioinformation encounters may impact our identities in a variety of ways. It is also necessary to unpack further what attending to identity interests adds to the ethical and regulatory landscape. The chapter addresses each of these aims. It starts by reviewing the nature and strength of our identity-related interests – both in accessing personal bioinformation that supports the development and maintenance of inhabitable embodied self-narratives and in doing so in waysthat support this inhabitability. The discussion then explores the factors affecting when and why different information encounters engage or serve this fundamental interest. This entails examining why some kinds of bioinformation are experienced as having particular identity-significance at all and the factors shaping whether it then supports or undermines the inhabitability of our self-narratives. The chapter concludes by demonstrating that our narrative identity interests are neither coextensive nor reducible to the kinds of ethical concerns that currently dominate bioethical debates and information disclosure policies and the need to attend to identity impacts in their own right.
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