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Family caregiving for persons with advanced heart failure: An integrative review

Published online by Cambridge University Press:  28 May 2019

Alexandra Rae Hodson ,
Shelley Peacock  and
Lorraine Holtslander
Alexandra Rae Hodson*
Affiliation:
Faculty of Nursing, University of Regina, Saskatoon, Saskatchewan, Canada
Shelley Peacock
Affiliation:
College of Nursing, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
Lorraine Holtslander
Affiliation:
College of Nursing, University of Saskatchewan, Saskatoon, Saskatchewan, Canada University of the Witwatersrand, Johannesburg, South Africa
*
Author for correspondence: Alexandra Rae Hodson, Faculty of Nursing, University of Regina, 111-116 Research Drive, Saskatoon, Saskatchewan, Canada. S7N 3R3. E-mail: [email protected]
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Abstract

Objective

The unique needs of caregivers of those with advanced heart failure (HF) are not effectively being met, and reports of physical and mental health challenges are common. The objective is to identify the current state of the literature related to family caregivers of persons with advanced HF, ascertain gaps that require further exploration, and provide preliminary practice recommendations based on the results.

Method

Systematic review of quantitative and qualitative literature. A search of CINAHL, Medline, EMBASE, and PubMed identified 24 articles that met inclusion criteria. Data were analyzed using the constant comparison method and coded. Thematic analysis was used to develop themes.

Result

Sixteen qualitative and seven quantitative studies met inclusion criteria. Analysis of these studies identified six key areas: (1) undertaking a journey in a state of flux, (2) gaining strength, (3) forgetting oneself along the way, (4) seeking out sources of support, (5) preparing for end of life, and (6) finding closure.

Significance of results

The healthcare system currently struggles to meet the care demands of patients with chronic conditions such as advanced HF; as such, informal caregivers are undertaking key roles in the management of symptoms and promotion of the health of those with advanced HF. When caregivers are not adequately prepared for their role, both patient and caregiver well-being is compromised; therefore, a deeper understanding of the caregiving experience could assist in identifying the cause of caregiver anxiety and result in the development of strategies to minimize its effects. Overall, this review will also contribute to improving the current practice when working with caregivers of persons with advanced HF and serve as a basis for development of evidence informed interventions in the future.

Keywords

Advanced heart failureend of lifecaregiver strainfamily caregiverpalliative care
Type
Review Article
Information
Palliative & Supportive Care , Volume 17 , Issue 6 , December 2019 , pp. 720 - 734
Copyright
Copyright © Cambridge University Press 2019 

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