Hostname: page-component-cd9895bd7-gxg78 Total loading time: 0 Render date: 2024-12-27T04:29:41.709Z Has data issue: false hasContentIssue false

The impact of migration experiences and migration identities on the experiences of services and caring for a family member with dementia for Sikhs living in Wolverhampton, UK

Published online by Cambridge University Press:  18 July 2014

KARAN JUTLLA*
Affiliation:
The Association for Dementia Studies, University of Worcester, UK.
*
Address for correspondence: Karan Jutlla, The Association for Dementia Studies, Bredon Building, St John's Campus, University of Worcester, Worcester WR2 6AJ, UK. E-mail: [email protected]

Abstract

This article is based upon qualitative research carried out with members of the Sikh community caring for a person with dementia. Previous research with South Asian carers of people with dementia has reported problems with both access to, and use of, health and social care services namely due to cultural and language barriers within existing services. The research reported in this article sought for an in-depth understanding of the experiences of Sikhs caring for their family member with dementia. The aim of the research was to explore how migration experiences and life histories impact on perceptions and experiences of caring for a family member with dementia for Sikhs living in Wolverhampton in the West Midlands, United Kingdom. The research, undertaken by the author, applied a biographical approach using narrative interviews. Twelve Sikh carers of a family member with dementia were interviewed. Findings highlighted that migration experiences and migration identities are important for understanding participants’ experiences of services and experiences of caring for a family member with dementia. Person-centred dementia care as a model for practice highlights the importance of understanding life histories to support people to live well with dementia, including their family carers. This paper reinforces this message, demonstrating the impact of specific migration experiences on the experiences of caring for a family member with dementia.

Type
Articles
Copyright
Copyright © Cambridge University Press 2014 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

All Party Parliamentary Group on Dementia 2013. Dementia Does Not Discriminate: The Experiences of Black, Asian and Minority Ethnic Communities. House of Commons, London.Google Scholar
Atkinson, R. 2002. The life story interview. In Gubrium, J. F. and Holstein, J. A. (eds), Handbook of Interview Research: Context and Method. Sage, London, 121–40.Google Scholar
Bauer, M. 1996. The Narrative Interview: Comments on a Technique for Qualitative Data Collection. Papers in Social Research Methods, Qualitative Series 1, London School of Economics and Political Science Methodology Institute. Available online at http://www2.lse.ac.uk/methodologyInstitute/pdf/QualPapers/Bauer-NARRAT1SS.pdf [Accessed 1 May 2009].Google Scholar
Beach, M. C. and Inui, T. 2006. Relationship-centred care: a constructive reframing. Journal of General Internal Medicine, 21, 1, 38.Google Scholar
Botsford, J., Clarke, C. L. and Gibb, E. 2011. Research and dementia, caring and ethnicity: a review of the literature. Journal of Research in Nursing, 16, 5, 437–49.Google Scholar
Brooker, D. 2007. Person-centred Dementia Care: Making Services Better. Jessica Kingsley, London.Google Scholar
Charmaz, K. 2006. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Sage, London.Google Scholar
Corbin, J. and Strauss, A. 2008. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Third edition, Sage, London.Google Scholar
Department of Health 1998. They Look After Their Own Don't They? Inspection of Community Care Services for Black and Minority Ethnic Older People. Department of Health, London.Google Scholar
Department of Health 2009. Living Well with Dementia: A National Dementia Strategy. Department of Health, London.Google Scholar
Department of Health 2012. Prime Minister's Challenge on Dementia: Delivering Major Improvements in Dementia Care and Research by 2015. Department of Health, London.Google Scholar
Gardner, K. 2002. Age, Narrative and Migration. Berg, Oxford.Google Scholar
Golafshani, N. 2003. Understanding reliability and validity in qualitative research. The Qualitative Report, 8, 4, 597607.Google Scholar
Jolley, D., Moreland, N., Read, K., Kaur, H., Jutlla, K. and Clark, M. 2009. The ‘Twice a Child’ Projects: learning about dementia and related disorders within the black and minority ethnic population of an English city and improving relevant services. Journal of Ethnicity and Inequalities in Health and Social Care, 2, 4, 49.Google Scholar
Jutlla, K. 2013. Ethnicity and cultural diversity in dementia care: a review of the research. Journal of Dementia Care, 21, 2, 33–9.Google Scholar
Jutlla, K. and Moreland, N. 2007. Twice a Child III: The Experiences of Asian Carers of Older People with Dementia in Wolverhampton. Fordementiaplus, Wolverhampton, UK.Google Scholar
Kaur, H., Jutlla, K., Moreland, N. and Read, K. 2010. How a link nurse ensured equal treatment for people of Asian origin with dementia. Nursing Times, 106, 24, 49.Google ScholarPubMed
Kitwood, T. 1997. Dementia Reconsidered: The Person Comes First. Open University Press, Buckingham, UK.Google Scholar
Lievesley, N. 2010. The Future Ageing of the Ethnic Minority Population of England and Wales. Runnymede and the Centre for Policy on Ageing, London.Google Scholar
Luengo-Fernandez, R., Leal, J. and Gray, A. 2010. Dementia 2010: The Economic Burden of Dementia and Associated Research Funding in the United Kingdom. Alzheimer's Research Trust, Cambridge.Google Scholar
Mackenzie, J. 2006. Stigma and dementia − East European and South Asian family carers negotiating stigma in the UK. Dementia: The International Journal of Social Research and Practice, 5, 2, 233–48.Google Scholar
Mackenzie, J. 2007. Ethnic minority communities and the experience of dementia: a review and implications for practice. In Keady, J., Clarke, L. C. and Page, S. (eds), Partnerships in Community Mental Health Nursing and Dementia Care: Practice Perspectives. Open University Press, Maidenhead, UK, 7688.Google Scholar
May, H., Edwards, P. and Brooker, D. 2009. Enriched Care Planning for People with Dementia: A Good Practice Guide to Delivering Person-centred Care. Jessica Kingsley, London.Google Scholar
Milne, A. and Chryssanthopoulou, C. 2005. Dementia care-giving in black and Asian populations: reviewing and refining the research agenda. Journal of Community and Applied Social Psychology, 15, 2, 319–37.Google Scholar
Moreland, N. 2001. Twice a Child: Dementia Care for African-Caribbean and Asian Older People in Wolverhampton. Fordementiaplus, Wolverhampton, UK.Google Scholar
Moreland, N. 2003. Twice a Child II: Dementia Care for African-Caribbean and Asian Older People in Wolverhampton. Fordementiaplus, Wolverhampton, UK.Google Scholar
Moriarty, J., Sharif, N. and Robinson, J. (eds) 2011. Black and Minority Ethnic People with Dementia and Their Access to Support and Services. Research Briefing, Social Care Institute for Excellence, London.Google Scholar
Phillipson, C., Bernard, M., Phillips, J. and Ogg, J. 2001. The Family and Community Life of Older People. Social Networks and Social Support in Three Urban Areas. Routledge, London.Google Scholar
Seabrooke, V. and Milne, A. 2004. Culture and Care in Dementia: A Study of the Asian Community in Northwest Kent. The Mental Health Foundation, London.Google Scholar
Shah, A., Oommen, G. and Wuntakal, B. 2005. Cross-cultural aspects of dementia. Psychiatry, 4, 2, 103–6.Google Scholar
Turner, S. J. and Benbow, S. M. 2002. Dementia, stigma and the general practitioner. Hospital Update, 64, 1, 45–7.Google Scholar
Wohland, P., Rees, P., Norman, P., Boden, P. and Jasinska, M. 2011. Ethnic population projections for the UK and local areas, 2001–2051. In Moriarty, J., Sharif, N. and Robinson, J. (eds), Black and Minority Ethnic People with Dementia and Their Access to Support and Services. Research Briefing, Social Care Institute for Excellence, London, 2.Google Scholar
Wolverhampton City Council 2003. Information and Research Briefing: 2001 Census of Population Results – Key Statistics for Wolverhampton. Wolverhampton City Council, Wolverhampton, UK.Google Scholar
Wolverhampton City Council 2012. Wolverhampton in Profile: 2011 Census. Available online at http://www.wolverhamptoninprofile.org.uk/profiles/profile?profileId=14#iasProfileSection2 [Accessed 17 December 2012].Google Scholar